Time does change things though. A live baby changes them ever more. But I strongly doubt that most people I know have any idea just how fundamentally different I am after all that has happened to me and how desperately sad I still am.
Lately, for one reason or another, I have been thinking so much about all of those nitty, gritty details of her death and birth - details which I need to record here more often, so I can keep them alive. Because as painful as they are, I don't want to forget them. With Hope, that is all I've got. I am not sure if it is because we are heading towards Angus' first birthday, as when I think back to Hope's first birthday, everything was raw and fresh and vivid again. Maybe the birthdays of my children will just always do it for me, I'm not sure.
The pain is exquisite. To think that my beautiful, happy, healthy, easy, joyous pregnancy ended that way still leaves me breathless. And to think that I pushed out a baby who I knew was already dead - quite simply I don't know how I did it. Thinking about the unfairness of it all makes me want to throw up. The what ifs are around every corner in my life without her. I still hold so much anger for the caregivers who failed us. And guilt still pules through me when I think back to all that I didn't do to save her.
My little family of three spent last weekend in Sydney. On the Sunday, we attended a fabulous lunch for the Stillbirth Foundation Australia (please donate to this wonderful cause). Getting ready to go to the lunch, I felt this huge sense of injustice. This was not a lunch I wanted to be going to. I didn't want to have a reason to know about this charity. I didn't want to be that person. That woman with the stillborn baby. But I am that woman. I will always be that woman. And because I have to now live this life, I am glad such a wonderful organisation exists.
Stepping in to a room full of hundreds of people from your own sad tribe, knowing that you wont have to feel uncomfortable for even a moment is a lovely thing. To know that if you are asked how many kids you have and you answer "two, but one is dead" and no one is going to walk away and stop talking to you is enough to make you giddy. In two years, I have never felt more at ease. These were my people and I had finally found them. And last Sunday, I was lucky enough to sit down to lunch with them all, even if I didn't get to talk to everyone.
I was then given a golden opportunity to put stillbirth on the map when the local TV network arrived to do a story for the nightly bulletin. They said they would lead with a story about the luncheon, but she did admit it was a slow news day.
And in the few minutes I had to speak to this lovely but slightly clueless reporter I wondered what it was that I exactly wanted to say that would sum up and make clear for Joe Public just what it is like to lose a baby. And there still really are no words. Nor is there enough time.
I did however say that if people thought the very act of delivering her dead body was the hard part, that they were sorely mistaken. That it was the continuation of life and the living day in, day out without her that caused the real pain.
Despite most of our interview ending up on the cutting room floor, I could have talked to the reporter for hours about my pain. If she had all day, I would have talked for two. Any chance I get, I will take it, because I want others to know. I am sick of suffering, and for the most part, in silence.
Yet in recent months, this blog has sat in relative silence. I have lost the will to write and lost all desire to keep sharing my thoughts and pain. It all feels so horribly self indulgent and there is nothing new to say. I'm tired.
I have also thought about ending this blog all together, numerous times. And other times, I have thought about starting some place new so I can air my thoughts in relative privacy again, just like when I first started writing here. But neither option feels right. My grief isn't going anywhere, so I don't think my space in which I write about my grief should go anywhere either.
Many people who lose babies and blog seem to stop writing after a certain amount of time, especially if a new baby follows the one who dies. And I think for all the new girls out there losing babies, they possibly want to see the reality of what it is like two, three, four, 10 years down the track. I know I did. And I'm not sure I thought it would look like this. I'm not sure what I thought it would look like. In those early days, when it was all suffering and a million tears before breakfast, I couldn't even manage to look this far ahead. But here I am. Two and a bit years. On the cusp of a first birthday for the baby who followed and at some point in the future, considerin another one.
I guess I want people to know that despite the happy smiling baby in my lap and how well life has turned out for me in the wake of Hope dying, I am still hurting. Anger, rage, jealousy and deep sadness are constant companions. I can laugh til I cry playing with Angus all the while thinking about holding a dead, cold, stiff eight pound infant in my arms. I can be the singing, dancing all-entertaining mummy to a happy little boy while thinking about lying on an ultrasound table in a dark room looking at a very still baby heart on the screen. I'm changing a nappy one minute then in my mind the next minute, I am sitting at my daughter's funeral staring at a tiny white coffin wishing so much it hurts that it is all a bad dream.
And this is not a shout out for sympathy. Like when I post about Hope on my FB page. I am not asking for reams of comments or virtual hugs, I am just stating it as it is. I know most don't or can't get it and I can't really blame them for that, but I want to keep putting it out there. For those I do know who still read here and those I don't. I want everyone to know that this is real and it is awful and it doesn't get better it just goes on and on and on. Stillbirth still happens and it is a tragedy in every sense of the word. There is absolutely no closure and no getting over it. It is what happened to me and it is who I am now. She's still my baby and this is still my space to write about her and how lost I feel without her.






Yeah. I get this. Feel the same way. I won't close my blog although sometimes it feels like its come to the end... because I know there are hills and valleys everywhere on this journey and they pop up in the most unexpected/expected of times.
ReplyDeleteSending love and hugs for all of you. Especially for your little lady bug princess. xx
This is such a heartbreaking post...yet I'm so glad that you continue to write and share your thoughts and dreams with all of us. There is no one that can ever tell you what you should or shouldn't feel or how long you should feel it. It will always be there, and you can always write about it hear or feel it in your heart. There is no judgment here. Do what is best for you...and know that people are here (out there) who know and share your feelings. Thinking about you always. ((hugs))
ReplyDeleteYes ... to all of this.
ReplyDeleteI'm on almost the same time line with another little boy who came after and I can't quite leave my blog either.
(And well done on the news item, even if you were edited. Getting it out there is so important.)
This is such a great post. I agree--I wanted to know what happens next, down the road. I always knew we wanted to try again for another baby, knowing full well his or her birth would live side by side with our grief.
ReplyDeleteBut need to know. How this goes on, because it doesn't end. C often says, "No one should have to know what it feels like to hold your dead baby." And you're right: the birth itself was traumatic, but it's the going on that's the hard part.
No matter what, if you continue to write here or not, I'll never forget Hope.
xo
although harvey wasn't a still birth, i very much relate to alot of what you have said. coming up to my one year anniversary and in my third trimester with my new baby, i seem to have lost the will to write. i still think of harvey every minute of every day and i can't see that changing. its not as exhausting as it used to be physically but its still there and i hate it xxx anne
ReplyDeleteSally, you know that your Hope's story still leaves me breathless too. So unfair and sad.
ReplyDeleteI wish I could take the guilt away from you.
I'm glad that you found some comfort and companionship at the lunch and that you managed to speak to the reporter there. But I wish you'd no need of that fantastic organisation. xo
And I'm still here with you Sal.
ReplyDeletexxx
I think it is important you have this place, for your whole family. I remember writing in detail the story of my daughters birth and death (death and birth) because of exactly the same reason. As awful as it all was and is, I didn't want to forget a single thing. It was all I had of her, and be damned if I was going to lose any of it.
ReplyDeleteWhen the world moves on and is bored with hearing about it all and the ongoing pain, your blog is a place of refuge and listening ears. From people, although unmet, who care. So good on you for still coming here and using it the way you want to, for Hope's memory. For your venting, remembering, grieving, hoping, crying and just saying what you think.
It was great to see you on that news bulletin, that day must have been amazing, to be with all those people who just 'know, and yet have such different stories. Thinking of you....
I'm not so far along as you Sally,but I understand a lot of this. I've begun to feel self indulgent for still grieving, and I'm not even sure why.
ReplyDeleteYou are right though, I want to read how others are doing who are further down this road than I am.
Oh, and well done on the news item, so lovely to see and hear you even if it was so brief. x
This is such a good post and rings so true. I'm glad you continue to write. So many think after a certain amount of time, the pain ends and goes away, but this is definitely not the case. XO
ReplyDeleteThis brought me tears. I remember that feeling too, when Lyra headed towards her first birthday, and every day I still think back to that fateful day and the long, dark days that followed. That still comes.
ReplyDeleteBig ((hugs)), sweet mama.
Well said!I admire your strength to keep putting it out there. For whatever reason, I am afraid to post my sadness on FB. Same goes IRL. I put on my happy face, yet all the while I wonder if people have any idea how sad I still am. Please don't go anywhere. I like to read you, even if you feel like you are saying the same thing. (And imo, you are not)!
ReplyDeleteI had no idea that my Premier had a daughter that was stillborn. Thank you for putting up that link. I am here, quiet at times, but still here.
ReplyDeleteYou know I struggle with life and death in the blogging context - not becuase I don't want too write about Alice but more because I find it hard knowing that certain people read it. But she will always be there. When I wrote about breatfeeding of course I was crying about how fucked up it is that I never got to feed her.
xxx
I don't think people can imagine how much they are on our minds. It's a constant thing.
ReplyDeleteI know I don't have the will to write as much as I used to and I've thought of stopping altogether but the space is mine and hers and it just doesn't feel completely right to walk away from it.