I attended a meeting with SANDS Victoria last week to help them out with a little project. They are re-writing all of their literature for bereaved parents and their families and they wanted my help with the job - given I am both a bereaved parent and somewhat of a writer. I was only too happy to help. Doing these things are the way I parent Hope now. There is nothing else I can do for her except say yes when these little opportunities come my way. And with almost four years of grieving under my belt, I feel strong enough to offer my services in this way. I don't need to go in to specifics about the meeting, only to say that I think when the project is complete, it will benefit all of the new members of this shitty club. A club you can only ever understand how horrendous it is if you are a member yourself. Others can only imagine and I'm quite sure their imaginations always fall short.
Along with the SANDS staff, there was one other bereaved mother there to provide input. She was just five months out from her loss. I was shocked. Five months. Five months is so desperately raw, so new, so painful, so all consuming. She had lost her first and only little boy late last year and was still in a place of absolute despair. I could see it in her eyes. I could see myself in her eyes, the me of three and a half years ago. I wanted to wrap her up and cocoon her from all the hurt. But I know that's not possible. Sadly, to get to any place of being able to fully function again, and to find any sort of healing, you have to go through it. It was amazing to talk to and connect with this woman. We were both surprised, but at the same time not surprised, at how many of the same thoughts and feelings we shared about our losses. There are so many universal truths and feelings when you join this club. We were constantly nodding and smiling at what one another said.
Seeing this woman at this meeting made me wonder though if I'd have been able to do something like that myself at five months out. My gut says no. Five months for me was pure hell. In fact I'm not sure it ever got any worse than that. I think I hit rock bottom around that time. I'd just had my first Christmas without her, the calendar had just ticked over to a fresh new year, meaning I'd left her and her year of 2008 behind, I wasn't pregnant again yet (though I was desperately trying to be) and things were just happening around me that made me spiral almost totally out of control with the grief.
And this was the time when several in my life up and walked away from me. It was too hard for them. MY grief was too much. And to a degree, I can almost understand. I made it borderline impossible for some people. But I was going through something that was practically impossible to deal with. Some days it still feels impossible to deal with. My baby girl died. Life doesn't get much worse than that and five months is such a short amount of time when I have the rest of my earthly days to be apart from her. The fact I've somehow muddled my way through almost four years without her is somewhat miraculous to me.
Yet I soldiered on. I put one foot in front of the other. I continued to live and breathe and make the best of my new shitty set of circumstances. What on earth else was there to do? I did the best I could. I think I did a bloody good job. I don't care what anyone else thinks.
And that's the thing with a grief like this - there is no right or wrong way to get through it. There aren't good grievers, bad grievers or ugly grievers - it's just us, the grieving. One big group, united by one awful thing, the death of our children. I didn't set out to grieve in a particular way. I simply walked the path as it twisted and turned and dipped in to the pits of hell in front of me. We all trod the path differently. Sometimes we crawl, sometimes we can get in to a bit of a canter, especially when things start to get rosy again. We all do the best we can. Just because one grieving mother is able to achieve one thing at a particular stage of her grief, just months from the most catastrophic event in her life, it doesn't mean she is grieving "better". And because I was still wallowing in a pit of hell at five months it doesn't mean I was worse at my grief, either. It is all about survival. And appearances can be a funny thing anyway. Because what might look like a more dignified, refined and more socially acceptable sort of grief on the outside, is most likely still a stifling and all-consumig sort of grief on the inside. You just don't know, unless you are living it. And if you're not living it, lucky fucking you.
Hope is forever in the background of my thoughts. She's just always there. I mean her picture is the screen saver on my phone for crying out loud. Her little face is covered by the icons that clutter my screen and as a result, clutter my now busy living-children centred-life, but she is always there. Sometimes, like now though, thoughts of her come to the foreground. The missing becomes more pronounced, and I dip in to that well of sadness again. It is not hard to go back there. Seeing that poor, newly bereaved woman at the meeting last week just drove home for me how awful this is and that no matter how much time passes, there really is no getting over this. Of course I know that, but sometimes I think others need reminding of it.
#MicroblogMondays: Olympic hangover
6 hours ago






Yup, to all of this.
ReplyDeleteIt's impossible to believe I have the remainder of my life to live without my son. It's heartbreaking to think about it, really. :(
I don't think I could help re-write that information a few months out either. At 5 months post-loss, you're really in the thick of things, and I remember month 6-ish was basically the worst of the lot. I believe I was still counting my loss in weeks and how many "Sundays" it ahd been. So raw. I'm proud of you for doing this though.
And remembering with you always. :)
Yes, me too. Me too. To all of it.
ReplyDelete4 1/2 months is just about when I went and got medication to make the really hard spots just a little more gentle. I was scared - terrified, in fact - of my grief. It was a deep, endless pit that swallowed me whole and chased me down and held me underwater...Luckily I got pregnant that month and the pregnancy hormones (combined with the hope of a rainbow baby) helped sustain me out of the pits of despair and I avoided heavy medication. But, yeah, no way could I help with rewriting the information at that point. I don't know if I could, even now, really.
Sending you much love, as always, and yes, yes, yes, remembering Hope with love.
5 to 9 months...whew, that was the worst. Poor woman. You hope it gets better when you're in the shitter, but you feel like it never will. You're right man, there is no such thing as a good or healthy griever. We just fucking do it, walk and walk and march and march and whatever comes next simply comes.
ReplyDeleteI'm glad you can still find ways to tangibly parent hope...what a nice way to connect with her. I find this whenever I go to support group or write about her...like this is how I parent my dead child.
Rambling here, one to many margaritas in me.
I'm so glad to know you and your hubby and kiddos.
J
Great post Sally, you've nailed it right here, I agree with Josh, we just fucking do it, what choice do we have?
ReplyDeleteLove you Sally. (my migraine is lifting enough for me to see...yay!)
Atta girl......proud of you. Love you. Privileged to know you xo
ReplyDeleteI think I would have done it, because I was grasping at that time. I would have done anything to talk about her at that time, or help someone else, or get out of my fucking head in her name. I agree that four months to a year was absolutely desperately horrible. Sending you love, glad you able to parent Hope in this way...sometimes I just want something to do for her, you know. Anything. Love you.
ReplyDeleteThat was just the pits for me too, I hit some weird 'I can pretend this hasn't happened' state which was a sort of madness I think. I would like to do things now but I would choose to be there for people navigating the hell of scbu and I never can, because we are the spectre everyone wants to pretend doesn't happen.
ReplyDelete"And if you're not living it, lucky fucking you." Amen.
ReplyDeleteI was one of those people who looked pretty good to the outside world about 4 months out - no public breakdowns, back to work - and then it all fell apart at the 6-month mark. The woman you met may need extra support soon. I'm glad she has you as a comrade and also as a role model.
Three months hit me the hardest I think—and then the two year mark almost broke me. I don't want to cocoon people to protect them, but I want to fast forward for them—same effect and equally impossible.
ReplyDelete5-7 months was so difficult for me. I felt like I was losing my mind. I remember sobbing "it's never going to get better," while my husband looked on unable to help or heal. Great post, Sally. Sending love, as always, and thank you for honoring and parenting Hope by rewriting that material.
ReplyDeleteYep. To all of it. I know thats not a very creative response and is pretty much what i always say to your posts... but I am so with you on this... right down to the picture on the phone with those annoying icons. Love to you Sal. xx
ReplyDeleteOh, the 5-6 month mark was hell over here for me. Definitely a very, very low point. And there were folks in my life that had a hard time dealing with that, too, although I learned to keep it to myself a lot around that time. So glad you're able to help with this project and in turn help other grieving parents. What a lovely way to give back and to remember Hope. xx
ReplyDelete6 months to one year was a pretty rough time over here. That feeling, the understanding of "it's not going to un-happen, or get better." There are still days where I catch myself in magical thinking, and it hits me that she's NEVER, like NEVER EVER going to be here.
ReplyDeleteSo glad you are able to participate in such a worthwhile project. They need you.
xo
Sometimes I just really need to hear that it is okay to still feel so, so terrible at 4.5 months out from Anja's death. In my 'real life,' it feels like people are expecting me to have gotten quite a lot 'better.' And even at the support group I attend I am starting to feel like I am lagging behind. It helps to know that you could not see yourself doing some of these things at five months, and it is comforting to read others commenting here about how bad things were around that time for them. (Not comforting to know that other felt bad, but comforting to know that I am not alone if feeling bad.) I know I mentioned before that I read your blog ages ago, before I needed it, but I will repeat it now: I can't believe I need it so badly now and I'm 'glad' you're here.
ReplyDeleteI did this. I think I thought if I go out to a babyloss 'thing', I'll meet others and I'll feel better. This was at only 4 weeks out (the Heartfelt Exhibition). I look back now and realise how in shock I was then. It was only when one of the parents got up and spoke (Spencers mum) that I realised that what she was saying was me. One minute 'God, this poor woman, how does she cope?'. Then, 'crap, that's ME!'. That was when I felt the room spinning, I felt like I was going to be sick so I bolted.
ReplyDelete5 months was horrible. It was then that I received our medical records and there, in black and white was detail of the sentinel event, the failed resuss, the catastophic medical negligence. So, at the worst time, it got worse. I knew the task ahead (inquest) and lost the plot. Within 2 months I was on medication. The ADs are gone now, and my grief is in lockdown. I just can't seem to go there. Maybe again, the self protection is kicking in because I know come those 10 days in August, when we're enduring the inquest, it's going to get a whole lot worse again. I'm well aware of the changes in grief, and how that rawness can come swinging back, also when you least expect it. I feel that if I felt the full force of it, I'd be one of the so called 'bad grievers' and everyone would go running, screaming 'my eyes, my eyes!'
Thankyou for reminding Sally. Love to you and your darling Hope. xo
Your words are so true. I am still wallowing in grief most of the time on the inside even if I look fine on the outside. Thanks for sharing!
ReplyDeleteOh dear... glad you were able to take part in this project. Priceless to contribute to something for new members of this club.
ReplyDeleteThinking back at the time I was 5 months in... no way I would have been able to do something constructive. I'd just buried my kid and split up from The Dad - there wasn't much else to do than bawl (and work for distraction). Though roundabout 6 months after that I tackled my first grief-related project: design a logo for a still-birthing room. I barely talked to the other team members.... I just cocooned behind my computer and did my thing. Wasn't able to contribute anything else but pixels.
You're right.... nothing is good or bad, is just IS.
Glad to have you by my side on this path.
Sands is a charity that is so dear to me - our support group was a lifeline.
ReplyDeleteI think because I was pregnant again so quickly, the 'forever' of the loss that Mary Beth describes didn't hit me properly until my second son was born. Since then, I sometimes feel like I'm grieving from the start again.