I've read a lot of blogs in the past two and a half years. More posts about parents missing their beloved children than I would ever dare try and count. Each post from every single parent leaves me feeling less alone and more supported. I hate to think of all the other tasks I could have completed in my life had I not spent so much time immersed in the sadness of others, but more importantly, I hate to think of where I'd be right now in my grief if I didn't have these blogs.
Last Wednesday night, I had the rare privilege of being in a room with about 200 people who "get it". It was at an exhibition opening for the wonderful organisation Heartfelt who came to the hospital to take beautiful pictures of Hope after she was born. I have had a lot to do with Heartfelt since we lost Hope, striking up a great friendship with the president and his wife and doing whatever I can to support them and help spread the word about their amazing, voluntary service (see an article I wrote for a parenting magazine below). My heart always breaks when I hear another parent say "I wish I knew about Heartfelt when my child died". My hope is that we can change that so all parents who say goodbye to a child too soon are given the opportunity of having a Heartfelt photographer attend during their darkest hour.
think twice about. But what if that baby is sick, premature, or worse stillborn? For these parents there is an amazing voluntary organisation known as Heartfelt, which uses a team of...read more...Tech Tags: Nurture newspaper HEARTFELT
We were so proud the week before the exhibition to have been featured on a major news broadcast about Heartfelt and the work they do for shattered families like ours. People told us we were "brave" and "strong" to put our story forward like that, and speak about Hope and our loss in such a candid way, but that isn't brave to us - we think it is so important to get the
message out there. Losses like ours are rarely talked about in the media today I think it is important to spread the babyloss gospel. You can view the video here.
In all my time as a grieving mother, I don't think I have experienced a night like this. We tried a support group once very early on and we found it wasn't for us, and I've been lucky enough to meet a few wonderful grieving mothers in person, but this was something special. It was without a doubt the best time I have had since giving birth to Angus just over 16 months ago. Some might find that strange, as the exhibition featured dozens of photos of children no longer with us, each complete with it's own tragic story. But while reading about loss and grief is one thing, being face to face with a room full of grieving parents and being able to talk so openly about our children and our pain was the most comforting thing I think I've done since she died. If I didn't already know I wasn't alone, I'm absolutely certain of the fact now. And the women walking beside me are wonderful, warm and full of grace and compassion. I am in awe of each and every one of them. And I miss their children with them.
Gavin, Heartfelt's president, gave a wonderful speech to open the exhibition, followed by two amazing nurses then two grieving mothers. The mothers were the only two who managed to squeeze a tear out of me on the night. I'm like a woman of stone these days and rarely cry. I may well have used up all of my tears. They certainly don't fall as frequently. The first mother was composed and very dignified in her speech and she illustrated the pain parents feel after losing a child in the most perfect and articulate way. The second mother gave a very different speech and cried the entire way through - as did most of the room. She also just nailed it in terms of putting it out there how bloody hard and relentless this is and how much we often have to suffer in silence. I wish every person I've ever met, especially those who have fallen by the wayside in the past two and a half years could have been in the room to hear these words. It made me feel like I am not a freak. I am not wallowing. That my grief is not too "intense", too "extreme", or too "different" from the norm, whatever that may be. It made me feel completely normal, and for that I will be forever grateful. Especially when in my last post, I talked about how vastly different I feel these days. I wish I could have bottled up the experience and express posted it to every babyloss mum I have ever met who wasn't fortunate enough to be there in the room with us on the night. I'm still struggling to find the right words on how much it all meant to me and how wonderful this organisation is. I figured getting it all out in a blog post would be a good place to start, as I don't want my memories of this night to fade.
The exhibition, while full of sadness and heartbreaking stories of loss, made me feel lighter. Something shifted in me that night. I felt proud to be there. Proud. Proud to be a grieving mother. While I'd give all four of my limbs not to be a grieving mother, on Wednesday night I felt proud. Proud of how far I've come. Proud of how well I'm doing now. Proud of Hope and how many lives she has touched and how important she is to so many other people. Sometimes I think she's had a far more remarkable impact in death than she may have ever had in life. I can imagine if I was keeping a blog now about her antics as a two and a half year old toddler, I'd probably have about two readers - both of her grandmothers. She and I would both just be faces in the crowd and by saying this I really don't mean to sell her short as I know she would have been amazing. It is just that we were just ordinary people leading an ordinary life. Her death was certainly extraordinary in so many ways and I am now proud to be helping to make extraordinary changes as a result of her death. I know our hospital didn't offer Heartfelt's services when Hope was stillborn, we were lucky enough to learn about them through a friend who made that initial call to Gavin. But on Wednesday night, I saw a social worker from our hospital there. Not wanting to blow my own horn, but it was ME who pestered the hospital with letters and emails after Hope died, urging them to support this worthy charity and to make sure their most unfortunate patients knew about them. If my dear friend didn't know about Heartfelt, I'd never have such beautiful pictures of Hope and my grief is bad enough as it is. I hate to think of where I'd be without those pictures, as ours most certainly do not do her, or us, justice (as you can see in my last post). I don't need anymore regrets in this long and lonely road of grief and I know too many mothers who wish they had just one decent photo of their baby. I'm was both delighted and heartbroken to learn on Wednesday, many families since ours have been offered the Heartfelt service at that particular hospital.
With the lightness has come another level of acceptance or perhaps letting go. I have held on to so much resentment and anger towards friends who abandoned me and who continue to abandon me as each new month passes. Yet I am the one always so quick to say, "only those who have been through this could ever get it". So I wonder, why have I expected so much from these people? None of my friends have ever been through anything like this, not even close. It doesn't mean I necessarily forgive them as many others managed what so many of them couldn't, but I'm relinquishing some of that anger. It is pointless. As a dear friend said to me in an email this week, it is more a case of "I just don't care anymore". And I don't. I lost my daughter, so no other loss I have experienced since is ever going to stack up.
I also couldn't finish without saying how lucky I was to spend some time with the amazing Carly at the exhibition. She flew over from Perth just for the event and she was like babyloss royalty. She looked like a princess and that was the first thing I said to her when I saw her. There is a certain aura about Carly and her presence in the room was an inspiration to so many. There was not a single person there who wasn't aware of who she was or what she does for this community and I think there were so many who were touched to finally meet her and thank her for her own precious photos. When we met at Angus' first birthday party last year, I was so busy and was barely able to sit down and speak two words to her, but Wednesday was different, with Angus safely tucked in bed at home with his Nannie. We were even able to head out afterwards and share a pizza, as if we do it every week and have been doing it since high school. I feel so lucky to have met Carly and to share such a special friendship with her, despite the fact I'm so unlucky to be in this shitty situation the first place.
The pictures from the exhibition left me breathless. Each one with such a heartbreaking story behind them. It is without doubt, when looking at photos like this, you realise they tell so much more than a thousand words.
I know when I look at Hope's photos, I see a million words and endless possibilities. I wish she was here but given that she's not, I'm so glad I have these precious pictures of her to soften the edges of my pain. Thank you Heartfelt. And thanks for an unforgettable night last week.






Proud is the most overwhelming feeling I had on the night too. Much love to you Sal. xx
ReplyDeleteAh, community.
ReplyDeleteIt is so healing and supportive to find your village.
Glad this touched you. And you look great!
Bravo, Sally. On everything. On getting the word out about Heartfelt, about coming to a place of letting go, of being the proud mom of Hope - all of it has me proud to know you.
ReplyDeleteSally, reading this post I'm infected by your enthusiasm. It's easy to tell how much this exhibition has moved you.
ReplyDeleteYou are lucky to have those beautiful photos of Hope.
I wish there was something like Heartfelt here in the UK. Maybe there is, and I just never knew about it?
We only have a handful of photos of Florence, most of which we've never shared. Most are badly lit, badly composed, but I'm still glad we have them.
beautiful... so beautiful
ReplyDeleteThanks for sharing this special event with us. I didn't know about Heartfelt, although I know of another company that does similar work. Didn't know about it THEN of course, have only come across these things in the after.
ReplyDeleteYou have done some wonderful things for other bereaved parents, be proud of yourself, I know Hope would be proud of you. And yes, your photos with Hope are gorgeous, in that beautiful but heartbreaking way.
xxx
Jeanette, I don't know of an organisation like Heartfelt here either. We are fortunate that the hospital asked their own medical photographer to take pictures of Emma - they are by far the most precious things we have relating to her - footprints are blurry and she had barely enough hair for us to keep a lock but the "proper" pictures are very, very precious.
ReplyDeleteSally, you should feel so very, very proud for ensuring that bereaved parents have access to such a precious service.
My parents suffered the loss of their full term still born daughter and my older sister, Amanda Lauren, 3 years before I was born and at that time, in 1981, they were not even allowed to hold her, let alone have a picture taken of her. The hospital personnel whisked her away so quickly that my mom does not even fully remember what she looked like. It fills me with such sadness and enrages me beyond words that my parents do not have a memory of Amanda's precious life other than the pain and suffering they endured at her passing, and a gravestone marker where she is buried. Thank God for organizations such as Heartfelt - what an immense gift they are giving families. Thank you for sharing your story and for passing on Heartfelt's mission. If you are interested, my infertility blog is www.infertilemyrtleme.blogspot.com.God bless.
ReplyDeleteThis is so amazing Sally.. I so wish I could connect with an organization like this where I live. Your piece was written so beautifully and is so full of eloquence, much like this post.
ReplyDeleteI wish I had more photos with Cullen.. there are so few. This has inspired me to contact the lovely photographer who took the few pictures that I have... to tell her how much I appreciate it and to encourage her to take as many pictures as possible when she is faced with a bereaved mother like myself.
Sally this great post has spurred me onward to get to Heartfelt's exhibition. I am only sorry not to have been around to go to the opening night, hear those first hand stories and to connect with those 200 people - not to mention meeting yourself and Carly!!
ReplyDeleteAnd proud you should be too Sally
<3
ReplyDeleteI so wish I could have been there...
My hospital never offered Heartfelt's services either. I'd never heard of them, until well after.
I'm so glad that the community has something so great as Heartfelt. The US has a similar organization called Now I Lay Me Down To Sleep but I don't think they're as recognized. Both organizations take such beautiful photos and I wish I had known about NILMTS while I was in the hospital with Collin. I have a few photos that the nurses took, but none of me or my husband holding him. I regret that so much.
ReplyDeleteYou and Carly look stunning.
xo
They do such amazing work for so many families... they, you and so many others do so much to help spread awareness and support about this issue. Thank you and love always xoxo
ReplyDeleteWhat an amazing experience this is. I so wish we had something like Heartfelt organization here. I'm glad that you were brave enough to share your story. People need to hear about this and be more aware. And what a great way to put Hope's name on the hearts and lips of other people. All my love to you mama~
ReplyDeleteYou should be proud. All of the work that you're doing to get the word out about Heartfelt and to drag the plight of bereaved parents out into the light of day is just amazing.
ReplyDeleteYou're a badass, Sally. Maybe that's a little crass for the comments section of the blog but it's true. I'm in awe.
Sally, you look wonderful in the picture. Honestly, I haven't seen you look so good on this blog. I have prayed that you find a way to honor your precious Hope that would also fulfill you. Something that would help you not be defined by this loss. Maybe this is it?
ReplyDeleteWhat an amazing organization. I've been enjoying following your involvement with them.
ReplyDeleteWhat you wrote about your blog if Hope had lived, that you'd be a "normal" family . . . I think about that all the time. I can't help it.
As shitty as it is to be in this particular situation, it does make me feel like Calla's life wasn't for naught when someone tells me my writing about her gives them hope, or strength, or compassion. I wouldn't be able to convey it if she hadn't been once mine.
Anyway, love your hairdo :) Thanks for this--good to see a post from you!
xo
This is such a touching post, Sally, and the exhibition sounds amazing. So wonderful that you were able to attend.
ReplyDeleteWe have a few pictures of Micah, most not very good, and my one real regret about our time with him is that we did not get proper pictures. The nurses mentioned Now I Lay Me Down To Sleep, which sounds like a similar organization to Heartfelt, but we were so dazed we never followed through. I wish we had.
Good for you for pushing your hospital to provide such wonderful services for grieving parents! You are to be commended.
I love the name Heartfelt, and I am so glad you shared this with us.
ReplyDeleteSending love.
TracyOC, that's about the best compliment I've ever had on this blog! Thanks for calling me a badass. And Vicky I'm sorry but I still do feel defined by this loss and to some extent think I always will. I guess I am just learning to live with it now, but I can't see a time in my life where her death wont define me.
ReplyDeleteThanks everyone else for all the support. This community continues to amaze me daily.
Dear Sally, Thanks so much for your support over at my blog for our recent loss. I have to confess, yours was one of the first blogs I found when I got home from hospital after losing Z, but I was not really in a state to comment then, and afterwards I felt shy. But it made a huge difference, to read Hope's birthstory and to know I wasn't alone. I think your work raising awareness of stillbirth and for Heartfelt is amazing. I wish I had the same energy. We're fortunate that a talented midwife took a beautiful photo of Z, but the ones with us holding her aren't terribly artistic, just heartbreaking (like yours). We're in melbourne too if you want a hand contacting hospitals about heartfelt here.
ReplyDeleteI hope I did not offend you and I am truly sorry if I did.
ReplyDeleteI am a woman of stone these days too... I cried a tear when I met that mom recently who lost her son to SIDS, but it was one tear. I could sit with her while she sobbed and was fine.
ReplyDeleteI wish I, or my nurses, had known about NILMDTS or Missing GRACE when I lost Curtis. My nurses did the best they could. And because of me they learned about those organizations after the fact... but those pictures you have of Hope, I look at those with longing and jealousy. I know the sense of peace I feel at Missing GRACE events, just knowing I am not alone. And I am on the other side of this all.
I am thinking so much about you...
I am so happy that you have something like Heartfelt around you.
ReplyDeleteI was quite taken by the description you gave of the two women who spoke. Lately, I wonder if I had to refer about Kaiser, would I be able to do it without shedding a tear? I do not think so. People are able to process it and present it so different even with all the emotions all being there.
Most of my colleagues are already parents...some of them are through with family building. I do not know if I can fit, and I don't care about it too.
I shed a tear when I saw a pic of you and Hope from that fateful day (in your previous post).
ReplyDeleteWonderful, wonderful post. I cannot begin to tell you how pleased I am that you found my blog today so that I could have the honour of finding yours. The previous post, I could have written word for word about 4 years ago (3 years in to my grief journey). Blogging was not something I had until a bit later. It defies me how some people think it's their (ghoulish) right to prey on those who are trying to work their way through this surrounded by their community - the ones who really understand and, if they haven't been through it, at least give nothing but supportive space.
ReplyDeleteI'm so excited you are spreading the word about Heartfelt. They are simply amazing.
Sally such bittersweet, beautiful words on loss, love , grief and memories.
ReplyDeleteOh how I wish I'd known about something like Heartfelt when Charlotte was born still.
thanks Sally for your thoughts. Have sent you an email on your gmail xxh
ReplyDeleteI'm late to this beautiful post Sally. I love the photo of you and Carly, you're both such amazing ladies. I think you know what's in my heart on this one. xxxx
ReplyDeleteI wished I had've known about Heartfelt. I even blogged once that my one dissappointment was never having any nice photos, only a handful that the nurses took using our camera, even then not good quality as they didnt know how to use it. It saddens me so much to know this service was out there and my hospital never offered it to us, just sent us a little pack in the mail one day with some morgue photos. I am so glad this service really does exist and that Heartfelt can reach as many others as possible. Since finding out about Heartfelt I have spread the word through FB and so too have my friends.
ReplyDeleteAlso wanted to say thank-you for sharing Hope's story. It helps mums like me feel less alone.
I knew about the organization Now I Lay Me Down to Sleep before I lost my son. But the night he died I was in such shock that nothing of the sort even crossed my mind. I have two decent pictures that I took with my phone, but my heart aches so much for not having anything more of the few hours I spent with him.
ReplyDelete