I'm not a very good blogger. I have always admired those who keep up with their blogs on a more regular basis and update their readers as to what is going on in the daily minutiae of their lives, but that has never really been me. At least, not since the height of my grief when it seemed all I had was this blog.
So I thought it was about time for a bit of an updatey type post, complete with a few pics of the kiddlets.
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Juliet will be three months old on Friday, which is quite hard to believe. Time certainly flies when you're getting no sleep! She's a happy little baby who likes to be snuggled to me and will sleep for hours on end if she's being cuddled or held. On her back in a basinette? Not so much. But while she's little, we don't mind meeting her needs in this way, especially as we think this really could be it for us in terms of growing our family. She's smiley and interactive and often if she's fussing, all you have to do is prop her on your knee, look at her and coo and she'll give you the biggest, cheesiest grin back in return. She's a people person like her mummy I guess and just wants to make people happy. And that she certainly does. She's an "easier" baby than her big brother and I am in turn a much more calm and relaxed mummy. It has all been confidence really and with Angus, I had none. Grief smashed what little confidence there was then his fussiness took away the rest.
At my six week check up a few weeks back, the dreaded CMV monster which almost derailed the pregnancy reared it's ugly head again, just when we thought we didn't have to worry about it anymore. Even though my amnio came back negative for the virus at 21 weeks, there was the chance the result could have been a false negative or that it could have crossed the placenta later in the pregnancy. Juliet was supposed to be tested at birth, but the obstetricians/paediatricians forgot and so did we. I think because she always looked so good on the many ultrasounds we had then looked so big and healthy at birth, it just slipped their minds as CMV babies are often smaller with a smaller head and this certainly wasn't the case for our not so little girl. So at seven weeks of age, we had her tested. And of course, the result was positive. We then had to try and determine if she got the virus in utero or picked it up in the first seven weeks of her life.
We were told that if she did get it in utero, that the consequences could have been much worse. Just as we were told when we first found out I had CMV when I was about seven weeks pregnant, we discovered hearing and vision loss could have been obstacles in her future, despite how good they both already seemed.
But if she picked the virus up post birth, then we were told there really wasn't much cause for concern, as it is such a common virus with small children, especially when there is a toddler around.
So off we went to see a paediatrician who gave our Juliet a thorough looking over. She's in the 90th percentile for weight and head circumference and feeding well and behaving like a very "normal" little baby, so she wasn't too worried, but said we could have her newborn screening test (the heel prick test) re-tested for CMV to see if it was present at birth. And thankfully, it wasn't. The most likely scenario is that she got it from my breastmilk, which really couldn't have been avoided because not breastfeeding her was simply not an option for me and I'm sure the benefits of breastfeeding her far outweigh the small risks of a nasty side effect from getting the virus. She will have a follow up hearing test at six months to be doubly sure everything is in order, but I feel in my heart she's perfectly fine - I really do have to go with my gut and trust my mothering intuition for once. As someone who has worried about absolutely everything, then when it seems there is nothing to worry about, conjured up something to worry about, I am certainly not worried about any of this. I hope I don't have to eat my words, but I have no reason to believe that my precious little girl is anything but perfectly healthy.
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On to my big boy. My spunky, determined, stubborn, feisty, funny but very affectionate little boy. He will be TWO on Thursday. Now THAT is hard to believe. He seems to be saying a new word everyday and stringing more and more of them together, though "no" or "no mum" are of course his favourites. We're taking him to the zoo for his birthday then having a barbecue with family in the park later that night. Nothing special, no fanfare, just sticking close to the people we love and who love us back.
Angus and I have never really been apart, except for the few nights I was in hospital when Juliet was born so we can start to drive each other a bit nuts by the end of a long week together, especially considering he's still adjusting to having a little sibling around, but we certainly have a very special bond. Here I was worrying myself about how on earth I'd entertain him while I had to sit for long periods of time every day to feed a new baby, but it turns out they are the easiest times of my day, as he comes and sits with me and strokes my hair and puts his arms around my neck. And often when I'm not holding her and she's in the swing, kicking about on the floor or in the bouncer, he asks me to pick her up so we can sit on the couch and all have a snuggle again. He's taken very well to having little "Juju" around and heaven forbid anyone else try and touch or hold her. "Juju, JUJU!! Mummy, Juju!" he says as points to her then back to my arms, indicating that's where he wants her to go. And heaven forbid you try and put him to bed without having given little Juliet a kiss. It is very sweet to watch and certainly turns my heart to mush.
I never wanted Angus to heal or fix me, as that was simply unfair and totally unrealistic, but my god he has helped me. He gave me purpose and reinstated my motherhood. I didn't just lose a baby when Hope died, I lost my motherhood and with that, it felt my total identity. He gave that back to me and really, brought me back to life. I doubt he'll ever realise just how special he is. I look at him now and I simply cannot connect him to the nine months of dread it took to get him here. Every moment of panic, every dreaded trip to the hospital emergency department, every tear shed - they were all worth it, a thousand times over. And the last two years have been a very steep learning curve but in reality, I wouldn't change a single second of them. All of the hair-pulling, foot-stamping, crazy hard moments have also all been worth it, because I get to be his mummy and that's all I ever wanted. A kid who lived and who would eventually drive me crazy!
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This blog also has a birthday this week. My third "blogiversary" is on the 18th. I don't think I've ever written about it before, because I guess for the past two years, it has coincided with a very busy time of year for me. I remember that lonely November day when I finally took the plunge and started the blog. It was the day before Hope's three month anniversary, and I thought the sun would never rise in my world again. I was in the thick of trying to get pregnant and a huge ball of anxiety, anger and sadness. It is hard to believe that just 12 months from that day, my arms were full again. I guess deep down I always knew I'd probably have another baby soon after Hope died. I of course worried that I wouldn't and that I'd never conceive again, but I did and it was quick and I'm forever grateful. But if you'd told me on that day that in three years time, I'd have two living children, I really don't think I would have believed that. Having two under two certainly does have it's challenges, but of course those don't stack up to the lifetime sentence that is living without Hope.
People sometimes ask me what I'm going to do with this blog. For now, I'm happy to keep it going as it is, that is - limping along. I don't need it as I once did and I certainly don't have the time to nourish it like I did back in those dark, desperate, early months. I have half considered going private, starting a new one to more freely discuss the living babies but it feels right to keep it all here, as it is. I have one life, and this is it. So this one blog will try and capture snippets of what goes on in this very life, the life where there are two babies in my arms and one in some place I can't reach. It is that parallel life of mine, desperately beyond my reach, that I wonder about the most. The life I never got to live. The one where my firstborn didn't die, and I headed down the more traditional route to parenthood where you get pregnant, stay pregnant, then bring baby home nine months later. I was just saying to a friend today, that despite how "well" I am doing now and "coping" with the shitty hand I've been dealt, I will never be the same. I am not the person I once was and I can never go back. She sort of disagreed with me and said I was "too hard on myself" because motherhood (that is, live baby motherhood) would have changed me anyway. Yes, it probably would have. But I am sure as hell that I am a lot different, irreversibly different, because she died and because I didn't get that version of motherhood, and indeed life. I guess I will never really know though. That's the thing about all of this. The not knowing. And I suppose that's in essence why I do keep coming back here. To try and make sense of the things that simply don't make sense. And it will never make sense, so the blog will remain so I can go around and around until I'm so dizzy I can't stand up anymore. For now though, I'm not there. So here I am. Still standing. Still not knowing. But of course ever so grateful for all that has come my way since stillbirth tore my life in two, three years and three months ago.
And because I haven't yet got around to making a slideshow of pics from Juliet's birth (as I did for Angus) here is the song I would have used for it if I did. I listened to it a lot when pregnant with her, saw the band (Belle & Sebastian) during the pregnancy and generally just love this song, so enjoy. I guess the name of the song really says it all, about so many things.
#MicroblogMondays: Olympic hangover
6 hours ago







I'm glad you're keeping Tuesday's Hope just the way it is. I sometimes refer back to posts you may have written at the same time out as I am now for some reference to help me feel 'normal' in this griefdom.
ReplyDeleteYou're right about never knowing. We don't know any different and can only imagine what life would be like with our babies here. Just as those who haven't lost can only imagine what it must be like to lose a baby. It seems futile (and sad - for me).
The CMV stuff is scary but you're right to follow your instincts. You know this little girl in your heart of hearts and the worry would be screaming for attention otherwise. Your comment about worrying made me laugh. My sister is a virgo as well and honestly does worry if she has nothing to worry about. My two little ones are both virgos...what am I in for :)!
And that last photo of Juju is so cute, she looks like a little buddha - just gorgeous. Cute song too Sally.
Please keep writing, even if it's not that often. I'll always read. xo
I find the not knowing hard as well. And anyone who knows me now would probably say I'm 'back to normal' but as you'll know - there's no going back. Some things I worry about more and others not at all.
ReplyDeleteAnd I wonder what that parrallel life would look like with our first born girls running around. xx
Such beautiful babies. It still makes me sad that Hope is not here. I'll always remember her, Sally. It's amazing to see how far we've come, considering how much we lost. Love you lots. xo
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ReplyDeleteYour children are just the beautifullest! And I love B&S, that song is awesome. I love seeing Tuesday's Hope pop up in my reader--please keep writing even if it's brief and infrequent!
ReplyDeleteSending you lots of love, Sally--thinking of you and all the babies.
xo
So much to relate to here Sally, but mainly thank you for continuing to write here - I found Tuesday's Hope from comments on the first BLM blog I had found I those early dark days; the Happy Sad Mama; the validation, the shining bright light that you both shone in front in my own grief - utterly priceless and I thank you with all of me.
ReplyDeleteBeautiful babies! I relate to so much here. It is hard to decide what to do with the blog once the point of desperately needing it has passed. I'm glad you're leaving it as you are. Thank you for updating, love knowing how things are on the other side of the world.
ReplyDeleteLove the pictures and the update
ReplyDeleteSounds like a perfect birthday for your boy.
Why is it 3 months out is such a hard time? I found it particularly bad, though I didn't start blogging until just over a year out. I hope you keep popping once in a while with updates whether it is sorting things out or just sharing where you are with any or all of your kids at any given time.
So good to get an update, and thank you for sharing that song, which is perfect.
ReplyDeleteAnd Happy Blogoversary! I am having a hard time believing it's been that long (or that short) a time since we came to the internet. I'm still so sad about why you came, but I'm very glad that I found you here.
So much love to you and your absolutely gorgeous babies.
You make pretty babies. :)
ReplyDeleteI'm glad you're keeping the blog as is. I'm looking forward to digging around in some of your posts from when you were pregnant with Angus to see how you managed to cope.
Thank you for leaving your blog up. I'm 2+ years behind you in the process of healing and trying to have living children. It's comforting to see that there might be a better future.
ReplyDeleteYour little ones are the cutest!
Beautiful babies. And Happy birthday Angus. I remember so vividly when he was born, maybe because he was the first baby after Lucy's death, that was conceived and born, and I had just spent a weekend with a group of babylost bloggers and we were all sending you so much love, surrounding you in light. Juju is so beautiful, and glad to hear she is an easier baby than Angus was. Sending love. xo
ReplyDeleteWe all have our blogging styles, and our writing accomplishes different things for us...so don't worry about being or not able to do it the others' way.
ReplyDeleteHappy 3 months, Juliet! I hope the CMV will just leave you and her alone. I am sure it must have scared you out to know she tested positive.
Happy Birthday, Angus. I know what you mean by him being a healer, and for reinstating motherhood in you. I am glad he is there in your life.
Happy Blogoversary...happy that this year has brought in such great news in your life...
Thanks for this post and the update. So sorry to hear about the CMV scare. Sheesh.
ReplyDeleteI'm so glad you started this blog and I'm glad it's still "limping" along. :)I like the idea of keeping it all in one place too. That's how I feel about my blog. It was going long before Margot died and I hope it goes for a long time after. We like to think of my blog as a "family record" that we can always look back on - pictures, videos, thoughts, essays about what we were up to. We already look back on it frequently. It sort of takes the blog out of the hands of the world and puts it where it belongs - in our family. Whenever I post or write, I feel like I'm posting for Kari and for Stella and Margot. My family of four. If others want to tag along, even for a time, I really appreciate it from the bottom of my heart. But, in the end, when only seven people are reading it, it's still just about my family. The good, tragic and everything that follows.
[god, i didn't mean to hijack your blog with my thoughts about my blog!]
Anyway, the kiddos are looking beautiful.
Peace to you today,
Josh
I agree with you that having a baby after Carleigh did a lot of healing for me and brought back joy I didn't realize was missing. The pregnancy was a scary time but totally worth it!
ReplyDeleteLove to see new pictures of the kiddos. Glad to know that things are going well with both of them. Also, happy blog-o-versary. :-)
ReplyDeleteYou are an amazing mum to all your gorgeous children... so lovely to hear your news and see the photos of Juliet and Angus. You've been through so much and it's an inspiration to me to read how things are going for you now... and would love to keep reading all your news and thoughts. Love always xoxo
ReplyDeleteI am so glad you are staying put... I do so love reading here.
ReplyDeleteHappy Birthday to Angus and I am so glad that Juliet is doing well after her diagnosis. Sweet babies and such beautiful pictures.
Always remembering Hope with each month and year that passes. We are so changed as mothers and I wonder if we will always seek to find the life that we never got to live.
Aww - you have three scrumptious children Sally - beautiful, bonny babes.I'm glad you're still "limping" along here - although I think it's probably a crime to refer to writing of this calibre like that! I feel the same. I couldn't handle trying to separate out the different strands of my life either - they're all tangled together and I tried closing out my blog and couldn't quite manage. There was still some sort of need inside of me for it - as infrequently used as it is.
ReplyDeleteI love every update you make. You continue to write so beautifully Sal...
ReplyDeletep.s. And I just love this: "He gave me purpose and reinstated my motherhood. I didn't just lose a baby when Hope died, I lost my motherhood and with that, it felt my total identity. He gave that back to me and really, brought me back to life."
ReplyDeleteSo, so true. Thanks for putting it into such simple words.
Love,
Ronnie xo
Beautiful babies you have Sally!
ReplyDeleteAll three of them.
Happy birthday to angus, he's such a cutie!
And Juliet is beautiful.
Hope is in our hearts always. our first horns have changed us forever, and brought us together.
Sending you love
Xox
Sorry for the typo...first borns, of course
ReplyDeletekidletts lol, I call them chitlins. Anywho they are beautiful!
ReplyDeleteHappy birthday Angus and Blog!! Congratz on Juliet's exams... glad to hear all is well. I love the pics... so full of life and cuteness. I'm glad you keep the blog as it is. Because you're right: that's your life... basta. Seems like november is THE month for starting a blog... same here.
ReplyDeleteMuch love! xo
I like the way you write and what you say. I too am glad you are staying open. Lovely, gorgeous pictures! Lots of love.
ReplyDeleteYou don't have time to blog because you spend so much time commenting and supporting other people :) I think on balance we all like it like that!
ReplyDeleteI can't believe CMV came back to haunt you but am so glad at how it's turned out, with Juliet having picked it up after birth. Thank goodness.
What you say about not being able to relate Angus to the nine months of dread... do you know, I'm the same with J, but I hadn't really realised it til you said. And I doubt J will realise how amazing he is to us, either.
Thank you for being there for us all. xxxx
I have a hard time keeping up with my blog too. Part of it is because I don't have the time, part of it is laziness, and part of it is because I'd rather spend time playing with my kid then typing away on a computer. I say, keep your blog as is, it (and we) always be here.
ReplyDeleteLike you, I never wanted Cooper to fix or heal me. To be honest, I don't think I'll ever be fixed or healed, my heart will always ache for my firstborn. But he has brought back so much happiness, and made my life so much fuller than it was before. I don't think he'll ever know or understand just how grateful I am for him. I don't know if our rainbows will understand the gravity of how much we needed them, or how much we really love them.
Please keep on writing, I love reading your posts.
xo
your kids are gorgeous! you should rethink your stance on being done since you make such great looking kids! and yes to evrything else. i have been pondering the blog ,yself and don't know what to do with it. sorry about the cmv scare. i am glad juju is doing well!
ReplyDeleteOh my, but your children, all of them, are so gorgeous! And I for one am glad that you keep on writing, even if it's just every so often. Your blog provides a lovely sense of 'yes, it does get better' while also not forgetting that 'yes, it does still hurt'. So glad to hear you've gotten good news on the CMV front with Juliet, that is wonderful to hear and Happy Second Birthday to Angus!
ReplyDelete