Friday, August 13, 2010

Reflections on almost two years without her

We're on the slippery slope now. Less than a week to go until the death and birth days are upon us again and I'm of course left wondering: how on earth have I survived this long without her?

Yes, in some ways this year has been much easier than last year though. The edges of my grief have softened and I don't have the extreme stress and worry of trying to get Angus here safely. He made it. And time has moved along and done the thing it is supposed to do - dragged me forward with it.

There is still an uneasiness there though, in the pit of my stomach. An uncertainty, yet again, of exactly what to do or how to make any meaning of the day. I'm not really in to rituals, cakes, butterflies, balloons or tears shed at her grave. I just don't know what the hell I am supposed to do with myself and how I am supposed to keep surviving these days. We're only two years in and there is most likely an awful long way to go. Many more August 19ths ahead of me. And it is such a daunting prospect.


One thing that has been bothering me a bit of late is that I don't like looking at her birthday as an anniversary and I don't like hearing people use that word. If we want to get specific, the anniversary is in fact on the 18th, the day she died inside my body. I prefer to just think of her birthday, as if I focus on the anniversary of her death, the day my life completely fell to pieces, I may not ever get out of bed again. To call her birthday an anniversary, as many do, I find it just focuses on the fact she is dead. Not the fact she was also born. I know when death comes before birth things get fuzzy, and when someone is not here to celebrate a birthday, and never has been, it can be pretty empty and meaningless, but to me I want to call the day her birthday. And remember it as just that. She was born dead, yes, but she was still born. I gave birth to her, I should know.


For most of next week, we will be away again, just like we were last year. Bit of a road trip this time as opposed to the flying north to escape the chilly Melbourne winter because that's all the budget allows for this year. And on some warped level, I am really looking forward to it, even though I know this is not the sort of holiday most families would like to take. Any family, for that matter. When I think about the second birthday party for a little blonde haired girl that could be, it makes me weak at the knees. A trip to the beach instead of that is really a pretty sucky consolation prize, which ever way you look at it.


So the time away can't come quick enough, really. It will be the first time in nine months we have been away as a family. Simon hasn't had any time off since Christmas and with Angus not being the easiest baby going around, while it has been joyful, it has also been a long nine months. I feel like I have been awake for almost all of those months. I am tired beyond measure and I hope that despite the heaviness of the days we'll be away for, I will be able to relax and recharge on some level.


We don't have any specific plans for the day(s) itself. And we'll be too far from home to visit her grave. I'd like to think that she wont be alone on the day though, as I am hoping some family a friends will visit her. I sent a brief email, letting people know we'd be touched if they could visit her or make a donation to the Stillbirth Foundation in her name, as this is what is important to us, but it was much shorter and sent to far fewer people this year. Last year I practically sent an essay to everyone in my address book and still regret that to this day, as it just set me up for disappointment. I really do get the impression that in some corners of my life, people are really just sick of hearing about it, so I kept it short and sweet this year and have drastically lowered my expectations of who will remember and how they will remember her - if at all.


I re-joined the social networking mecca that is FB again earlier this year. It took me a long time to find my feet there again. By deleting my profile the day Hope died, I kept myself and my grief hidden away from most I know. And I did so for the best part of 18 months. When I rejoined, I wasn't able to post about Hope or Angus or anything in my life for quite a while, but I am getting my FB groove on again, so to speak.


But with that, comes the sense that most are probably sick to death of what I post about Hope or anything babyloss related for that matter. Two years is a long time ago to everyone else, and of course everyone has their own shit in life to wade through, but this is it - this is my life. Babyloss rounds, shapes and colours everything I do. I look at my life through the lens of loss.


Each time I post something about Hope or loss I vow to myself - that's it, no more. I am just boring people and making them uneasy - I'm quite sure many have probably hidden my feed already. Then I think about quitting FB again all together. So then I try and post something normal and happy about Angus and his teeth or shitty nappies, then I get an ache that I can never post those sort of things for Hope and I'm right back at wanting to quit it again. It is just stupid FB for crying out loud, but all of those little things in life are much harder without her.


Oh how I miss my old life. Oh how I miss the old me.


And that's the thing, sometimes I worry that I don't actually think about or miss Hope herself quite enough. I am traumatised by what happened to me and all that I had to endure but that's precisely it, it is ME I am thinking about. ME I am sad for. Not Hope, my daughter, who suffered in a swamp of my meconium stained amniotic fluid, before all her vital organs shut down, which eventually took her life while I was plodding along through the end of my pregnancy blissfully unaware. I miss that old life, that innocent self. A life where I didn't know this sort of calamity existed. I just wish I knew how to miss her properly. I really wish I had some idea of who I was missing. I certainly miss the idea of her.


That's what happens with a stillbirth though. Her life was cut so brutally short. Before I'd even had the chance to get used to having her around. Or was able to learn even one thing about her. I'm not saying I don't miss her, I really do, but it is such an abstract concept to miss a baby you never knew. A baby who would not in fact be a baby any more. A fully fledged toddler running around my feet, speaking in full sentences and generally making life chaotic and fun. I just want another chance. I just want her back.


With Angus here though, I guess I now have more of an idea about what I missed out on, in a practical sense. He makes that very apparent each and every day. But as we all know, and as I have said countless times - he is not her.


I look at him and I marvel at every inch of his body, his every move and each new discovery he makes about this new world he calls home. But still, he is not her.

A few friends have had babies of late, and thankfully, most of those babies have been boys. Two have been born in the last week or so, and both of those babies had due dates the week of her birthday (and speaking of due dates, Hope's due date is tomorrow). I think most I know would assum these sort of things don't bother me as much now, but they do. I am finding babies in general a bit easier to handle, but babies born in August are always going to hit a raw nerve, I think. Like I said, I'm just grateful that the two newest ones in my life are boys, as baby girls, even if born to the greatest of friends, still leave me weepy.


I have been trying to figure out what to do in this space on Hope's birthday. In a way, I have been trying to find the time for her. And it is hard - Angus and a little bit of work here and there eat up much of my spare time, but in another life, she might have been here in the flesh, and I know I would have had the time for her then, so I should have the time for her now. Realistically though, I would have never had Hope and Angus here together, because if she lived it is highly unlikely he would have come to us, but a mother can still wish. I still want both my babies.


So I have been working on a little something for her. Nothing earth-shatteringly amazing. Just a photo montage, and there are only eight gazillion of those made by other babyloss mothers around the globe. But I wanted to try and say it with pictures, as I feel I have almost run out of words to convey how sad I am that she died.


Hopefully I get the video together on time - it would be pretty pathetic if I didn't. Hopefully it does her, and my grief justice. And hopefully we can find something to do together as a family on her birthday that isn't meaningless and as empty as I have been feeling of late.


.........................................................................


And so.

This post has been sitting open on my laptop alld ay.


This is the time where I am supposed to hit publish.


The post is finished. Brain dump over. I think.

But to me it all just sounds like blah blah blah blah blah blah blah blah.


It is another rambling, nonsensical mess that I'm sure doesn't make sense to anyone. I don't even think it makes sense to me.


And who is that anyone these days, I wonder? I get the feeling more in my real life might have found this place, but haven't yet said anything. Maybe they will, maybe the wont. Whatever. I'm just not sure I have it in me to care anymore.


So I wonder, what is the point? The point of coming here, to this space, and spewing out all of this brain mess when none of it will ever make a difference. She's not coming back. Ever. That I get.


What's the point of trying to make sense of it all? Two years out, it still doesn't make any more sense than the day she left us. There is still no healing, peace, closure, meaning or enlightenment to come out of the event of her stillbirth. I'm just going around and around, trying to make the best of the life that I've got left and I know it can still be a good life. With Angus here, that is certainly bucket loads easier than when he wasn't.


But really, what is the point of any of it?


Now I will really try and end this ramble. And I will end it on this: one of the reasons I do keep coming back here, to this place, to this community, is because of people like this. Doing things like this. And that's when I realise, some good has come out of the colossal mess that was her death. There is some small meaning to her short, yet beautiful life.


So if I can say anything that makes sense or is meaningful today, I will say this: Carly, once again, thank you. A thousand times, thank you.

Hitting publish now.

29 comments:

  1. I'm only six months in, but I feel every word. Especially the feeling as though we're boring people by talking about them so often. I actually had my sister in law delete me from facebook a week or so ago, because she was "tired of having to deal with it everytime [she] log[s] in."

    I won't be talking to her for a while.

    I agree with what you say about thinking of it as a birthday and not an anniversary, and they're two separate days. I'm even contemplating having "Died 26/2/2010 - Born 28/2/2010" on my son's headstone. His "angelversary" is two days before his birthday. I plan to celebrate his birthday, not his death day. I still gave birth to this wonderful little being.

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  2. You keep coming here because you need someplace safe to vent your feelings for Hope, and because WE care. We are missing Hope along with all of our babies, with you. Don't ever feel like you're non-sensical or spewing the same old same old. Since when does missing your dead baby ever get old? I will never tire of hearing about your grief, because as mothers, it will never go away. I sometimes think people get tired of hearing about my missing Kara as well, but I have to talk about her because the missing keeps building up inside until I vent it occasionally. It is ever present, as is your love and grief for Hope. Please don't ever think we're tired of hearing about her or about your feelings for her.
    On another note - I agree that the anniversary of her death and her birth are curious/uncomfortable to celebrate. However, we celebrate their life, even if it was short and lived only inside of us. They were loved completely and were safe, warm and comfortable in their lives. We will never forget.

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  3. Thinking of you a lot during August Sal. I hope you get some rest on your break.

    Totally identify with this post. I'm sure everyone is so sick to death of hearing about loss but somedays I just need to say her name and I need others to hear it.

    Loving Hope, Sal. Sending you all lots of love.

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  4. I always feel a little awkward posting a comment, because I haven't lived your hell, and certainly don't want to come across as having advice to give. But, I feel a little bit that the FB issue is the viewers' to deal with. You post what you need to, to honor your daughter, and to live your life as it is. People can choose to acknowledge this, even if it makes them uncomfortable, or they can use the hide button. It's your page, post what you want to.
    I love The Day of Hope - I've added it to my FB. Thinking of you, your Angel Baby and earthly family as you make it through the next week, and beyond.

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  5. Sally, I'm sat here crying and listening. I'm never tired of hearing about Hope and about all of our babies.x

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  6. I have so much I think I could write and relate to. I can identify with your words on different levels and will be thinking about you and Hope in the days ahead.

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  7. Oh honey, you hit the nail on the head with this: "I really wish I had some idea of who I was missing. I certainly miss the idea..."

    Me, too. The intangibleness (is that even a word?) makes this so isolating, because people simply don't get it. To them we're either hysterical dead-baby-freaks or we are an evil reminder how much life can suck. Either way it sucks.

    But... wow to the "August 19th Day Of Hope"... I still don't have real plans for next thursday either. I guess I'll just go by the day and see how I feel. I really hope you guys will have a few lovely days on the beach. And I hope that up somewhere in the baby-penthouse our wee ones share a piece of birthday-cake.

    Be assured I'll be thinking about you plenty... Big loves! xoxo

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  8. It all makes perfect sense to be. When you post a stream of consciousness like this, its like you just jumped right into my head, and I love you for that.

    Sending more in email....

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  9. thinking of you Sally..
    all my love,
    jane

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  10. I hear you and understand and know where you're coming from. I'm only two months out from the death of my son, but this post really resonated with me. Sending you hugs and wishing for peace for you during this month.

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  11. Sending love, and thinking about you and Hope. I hope your trip to the beach is lovely, but I wish you were planning for that second birthday party.

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  12. Even if you go away, you carry her in your heart. I hope you enjoy the time away, it sounds like it is much needed.
    Thinking of you. xo

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  13. Sending big hugs your way. You can bring them on vacation with you, too.

    I know what you mean about feeling like a broken record. But truly, FB can shove it. I have found that there are more people who really DO care than those who don't, and if they're your friends, they want you to be well. They need to understand that remembering and being sad are part of being . . . well? I don't know.

    Anyway. Thinking of you and your little girl as the two year mark nears. Just hugs and good thoughts and understanding and everything.

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  14. I'm thinking of you S. as always...again, I could have written much of the your post...although obviously not as eloquently.

    I hope you have a restful break. Be kind to yourself. And if you need an fb friend who's also walked this road, then I'm here.

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  15. Some days, I feel like I'm the only one who remembers my son. Everyone sees my second, but nobody mentions (out loud) Collin's name. And I, I think of him daily, talk to him in my head when I drive to and from work. I'm sure others are sick of me talking about him or losing him but it's the only way to keep him around.

    I'm thinking of you and your family...

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  16. love and hugs, sweet Sally... I think that, by reminding people that not everyone gets that "happy ending", we make them more aware and, hopefully, make the road easier the next time it happens to someone they know. True, some people cant handle it... But that is on them, not you and not us.

    It's hard when people think "death day" instead of "birth day", regardless of whether your child was stillborn or died shortly after birth. We've had people comment that we shouldnt be so morbid as to celebrate when our babies died; we constantly have to remind them that those were the days they were born- their deaths just happened to happen soon after. It's like they really dont get it.

    Sending lots of love and remembering Hope with you.

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  17. with Peyton's birthday a few weeks away, I can relate to so much of this post. In some ways I think the 2nd year is more confusing than the dark swirling mess that is the first. We want our babies. We want to honor them. But we don't know how, and people don't seem to care as much once that first year passes, and that hurts even more. Please know that I see some healing in your words. We never see in ourselves what others see in us, you know, but I find so much inspiration and understanding when I come to your space. Something about losing girls at the same time and having my feelings validated maybe. I hope you have a beautiful family vacation and get some rest. I know that wherever you go, Hope will find ways to show she is there with you.

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  18. Just so you know, I think you're a FB champion. I think you post exactly enough about both of your babies.

    (And I commend you for posting at all, as I have never gotten my FB groove back post-loss.)

    I'll be thinking about you and Hope this week. It's been so long yet so short at the same time.

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  19. I don't think I have anything useful to share with you regarding how to deal with these milestones. Just wanted to let you know that I'm thinking about you and yours.

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  20. My thoughts often echo yours...
    it's not blah blah blah. They are your feelings. And it will always be impossible to make any sense of what happened to Hope, or any other baby. Much love to you this week.

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  21. Here is where you get to just be you and say what comes to mind, no holds barred.
    Two years is hard. The realitiy of it all becomes oppressive.
    I will be thinking of you, of Hope and of what should have been. Holding you close.
    xxoo

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  22. I've been thinking about you so much this week. We're away from home and away, mostly, from computers. But I've been aware of Hope's birthday (I always think of it as her birthday) drawing near and just holding you in my thoughts. I, for one, am glad you are still here and still sharing your beautiful, precious Hope Angel with us.

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  23. Thinking of you Sally.

    And I put whatever I want on FB. It surprises me when people do respond. But they do.

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  24. Sally - just stopping in to let you know that you and your family are in my thoughts and prayers this week leading up to Hope's birthday.

    As always, the grief changes, but it never disappears. Know that we are always hear when you need to speak.

    Many hugs.

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  25. I wish. I wish. I wish.
    Sal, I dont have the words that come anywhere near to doing justice to what you have shared here. Know that I am your friend and am walking beside you and your boys. A candle will be burning here tomorrow for Hope's Birthday. See you soon.
    with much love xxxxxx

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  26. Right at the beginning of my journey reading of others experiences snd emotions validated my own, especially when people out there thought I should or could just "get over it" (I hope they never know the truth). Even now, reading your blah blah blah, I'm nodding and understanding.

    Yours was one of the first blogs I found and now couldn't imagine being without. When I think of George I think of Hope. When I write the word hope I think of your girl and you and I will always send my love to Hope and thank her for bringing her mummy into my life.

    Love you Sal

    xxx

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  27. Sally, I know it doesn't make anything better for you, but I've been coming here and caring about you and Hope and Angus for over a year. It's not boring, it's not blah blah blah. Not to me. I think about you and I care about you, even though I don't know you. I'm remembering Hope's birthday and sending you and Simon love.

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  28. Wanted to let you know I'm thinking of you and Hope today. ♥

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