Thursday, March 12, 2009

It's all out there now

Dear readers

It seems more people I know in real life read here than I initially thought. I assumed a few knew. I even told some when I started it. I know my family read. I know they know, and I know they know I know. We don't speak of it though, ever, they just let me be. And I thank them for it, because they know the blog isn't who I am. It is just something I do. Because lets face it, I have more spare time these days than most people I know. People talk of the crazy busy world we live in these days. Well I got off that train six months ago. Things move at a pretty leisurely pace in this crap world. Too leisurely for my liking. You all know I want to get on the first express train outta here.

But in recent days, it has come to light that there are quite a few more of my friends lurking out there than I realised.

And for the most part, I am cool with that. Whatever. I never made this private. In a backhanded kinda way, I did show it to you, because before I had the blog, I remember sending some of you links to some of my "favourite" blogs so you'd get an insight in to my pain - because so many others always managed to say it better than I ever could. And I figured if you were brave enough to keep reading those blogs, that eventually you'd follow me back to here.

I did lie to a few of you in the start. As you came out and asked me if I'd started my own blog and I said no. I make no apologies for that, I guess at the time I just wasn't ready for you to know. Even though you probably knew already, which is why you were asking me in the first place.

I never wanted to start this stupid damn blog. In fact I detested the idea at first. But in the end, back to the whole "leisurely life" thing, I just figured it would give me something to make the hours melt away a bit faster. I was out there giving so many others so much love, now it was time for me to get some back. And it has been great, and some real and true friendships have formed. How "lucky" will I be when I finally make it to the mainland of the States where I no doubt have free accommodation waiting for me in all corners of that country. And the same goes over here, in this little corner of the world, if any of you guys ever make it Down Under.

Now that most of this is out in the open, and that I know you know and you know I know you know, some have questioned some of the things I've said. Some of you have said how hard it has been to read, knowing that while you helplessly sit on the sidelines of my life now, you know there is not much you can do for me. Some have expressed relief that I started it, because they enjoy reading the comments I get knowing that I'm getting some much deserved love and understanding back in return. Some have told me they were upset by things I have written and asked I don't directly talk about them again. I guess I can meet those requests, as while it may be hard to believe, I never, ever set out to hurt feelings or to upset anyone. It has just provided me a space to vent my feelings - in all their ugliness. I don't regret anything I have said and I don't take anything back. For the most part, I have not named names and I have tried, where possible, to be kinda vague when it comes to who I am talking about. This has of course not always been possible, because when I have told some stories, the main characters are naturally going to know it is them I am talking about. And if that was you and you didn't like it, well I'm sorry. But like I said, I still can't really apologise, this story is what it is. The word ugly keeps coming up and for the most part it is, this is an ugly kinda story. Tainted here and there with bits of beauty though. Hopefully the ugly/beauty balance will start to shift in coming months. I'm as tired of this as the next person, trust me. I want there to be more beauty.

But I don't hate anyone. I have not defamed or abused anyone. If I "hate" anyone, it is those midwives who let me down in the most disastrous way imaginable in Hope's final days. And I don't even know what they look like and I don't know their names - so I can't defame them, by definition of the law. And I wouldn't anyway. I'm a bereaved mother, I'm not crazy. Well maybe just a little..... Because this is what happens here in this wonderful country when you make "decisions" about how you want your pregnancy managed and where and how you want to birth. If you don't have the money (or feel the need) to pay your way to see a hideously expensive private obstetrician who may well just find himself stuck at the 19th hole or lying on the beach in the Bahamas when it comes time for you to push, your "choice" is to join the queue of thousands of other women and plunge yourself in to the shaky world of our wonderful public health system. You see whoever is on duty that day, be it obstetrician or midwife, depending on how "low risk" you are and just hope they are warm and kind and take a liking to you. Everyone took a liking to me, Simon and my bump. I just lucked out those four days I laboured at home. The nurses on the other end of the phone didn't seem to think much of me, it would seem. I was a number, not a mother. You all know how that went.

I digress.....

So it brings me to censorship. Now I know so many in my real life are reading, do I stop saying some of the things I say? Do I stop writing all together? Do I delete the entire blog and all of the back story? Because that is pretty easily done. Delete. Bam. Gone. Or do I go private? Slink away somewhere. Change the name, change the settings and keep it open only for invited readers. And sorry, but quite a few of you might not get invited this time around. No hard feelings, but I might just need a place where I can say what I want, when I want without fear of being judged or upsetting anyone. Without censorship.

I've never been quite sure who my audience is. It was not and will not ever be for family and friends. If they want to read it, fine, but it is not specifically addressed to them, even though they are always going to feature prominently in it. It is kinda directed at women in my shoes, I guess. I mean I still think they make up the most of my readers. And I know there are others who lurk out there. You might spy on me, but I have spied back (thanks Stat.counter). In fact I can't believe any mother who doesn't know me at all and who has never been touched by stillbirth or the loss of a baby would be so brave to read here. But I can see you there, reading. And hello. And, wow, you're braver than I would be if the tables were turned. I have no doubt I would have remained blissfully ignorant to all of this. I'd do anything to be that girl again.

I guess the blog is for me. Helps me get stuff out of my messy head. Because most of my nights are spent with words buzzing around in my head that I need to get out so I can get some damn sleep. They buzz around in the shower, at the supermarket, in the car. Once upon a time a person would use pen and paper to process those thoughts, and I still do, but I suppose when I come here, others can make contact with me and make me feel less alone. And that's important, because grief is lonely work.

I worry my head is so messy some days. Clearly I needed to do more writing before I set off to visit my friend and her twin girls yesterday. There I was driving towards her house and before I knew it, I'd taken an exit and ended up on the freeway to Crap Knows Where before I realised, "holy shit Sally, where the eff are you going?" I have always prided myself on being someone who doesn't need a map to get somewhere the second time around. I only need to go there once and I generally remember my way when I'm headed there again. Well clearly not this time. I pulled over, got my street directory out and got myself back on track. I 'spose I have to excuse myself though, as the last time we went there, Simon was driving and it did fall within the last six months, and my mind these days is not what it once was.

But I digress again.....

I have always loved writing. And since I left uni, I've been lucky enough to get paid to do it. But it doesn't always help with that whole "paying the bills" thing. I had to give up the writing I loved, my journalism, and go and write about other things that got me, I sheepishly admit, a fatter pay cheque each fortnight. I have always wanted to write about something I am passionate about. Because I will wholeheartedly admit, retirement savings products are NOT what I am passionate about. And never will be. As important as some people may think they are, they are hardly life or death. They don't matter. No one will die as a result of not having them or having them, as the case may be. My daughter is what I am passionate about. And now with this here blog, I can finally write about my passion all day and night. And I don't really give a flying fuck who is listening when I talk about her. I don't care if no one does. I'm passionate about her, and I want to write about her and the journey of grief I have found myself on and if you want to read along with me, then that's all ok with me. Just strap yourselves in for the ride, folks.

So today I received two very interesting emails. One from someone I have never met and probably never will meet and one from a girl who is on the very fringes of my life and who I have actually only met in person a handful of times. But she has said some lovely things since I lost Hope, and despite months of not hearing from her, she popped in to my life again today. The timing was uncanny, given this post has been buzzing around in my head all day (and I swear I wasn't going to post today, I swear).

Here is the first email I received:

Hi Sally

I’m sorry to email you but I don’t know how to add a comment, and I just wanted to tell you how brilliant I think you are. A quick rundown of who the hell I am (you are probably wondering!) I’m 33 and live in X and I too live in a world without my little girl. My daughter X died 5 years ago coming up 11 May, she was 39 weeks and had a kidney disease they call “not compatible with life”. She fought like crazy, but died 31 minutes after her birth. I found out at 38 weeks during a routine growth scan as she was getting very big.

Anyway, I forget how I found your blog (probably one of those late nights trawling the internet for meaning, understanding, I don’t know what I’m searching for to tell you truth.) So I found your blog and have read every word, I mean every word you've ever written and I think your writing is amazing. I have spent years trying to articulate exactly what you have said.

Everything from friendships, relationships, withdrawal, overwhelming intense grief, faith, the all consuming world of trying to fall pregnant again...all of it. There’s not one entry that doesn't resonate with me in some way. I’m not sure exactly what I’m trying to say (I am NOT a gifted writer like yourself!)...but I feel a real connection with your journey. You have made such a difference in my life and I couldn't not let you know.

I also feel a connection with you and your gorgeous Hope, as my son X (I have gone on to have two sons) was also born 19 August last year. (I hope that’s OK to say – I understand how hard it can be to hear). I too wish for another little girl to hold one day, but love my boys with all my heart.

OK, feel like I’m rambling a bit now, so I all I will say, thank you from the bottom of my heart for the words you write. I feel like I've done nothing in X's honour and look at you in awe.

Much much love
X

This is the sort of email that makes me realise I am not going to take the the blog down, censor myself or move it to another place where people can't find it. As much as I thought it was just for me, now I see it can be and is for others. Who knew I could help people? And this women went through this five years ago, not last week. I should be learning from people like her! Amazing. (And I hope you don't mind me sharing this, X.)

And then this from the other above-mentioned girl on the fringes of my life:

Hey Sally

I just wanted to let you know that I was thinking of you and Simon and your Hope today. (And lots of other days). I think you are so extraordinarily brave, and dealing with the shittest possible thing in life in the most strong and honest way. I read your blog every now and again (I hope that’s ok?) and just wanted you to know that Hope hasn't been forgotten. I talk with X about Hope sometimes, too. She sure is a much loved beautiful girl.

I have my fingers and toes firmly crossed for you guys, and hope that next beautiful screaming baby is not too far away. You are an amazing Mum already.

Thinking of you,

X

She obviously found out about the blog somehow, off someone. And she's been kind and brave enough to tell me she reads and, blow me down, she thinks about me! I know lots and lots of people must think about me. All the time. I would even guess that some people think about me every day. Maybe multiple times a day. Or maybe I'm kidding myself. But I'm not a mind reader. I can't feel it when the thought of me or Hope passes through your mind. So it was nice of this girl to stop by and remind me that I am not alone in my old life either. That new and old friends, real life and interweb friends, are thinking about me.

I know I have caught some of you red handed reading here. I pulled you up on it and asked and you were kind enough to be honest with me and let me know that yes, you did poke you head in here from time to time (read: multiple times a day - yes, I can see you). If you know me and I don't already know you read here then please tell me. I'm not mad. I understand why you probably haven't told me already, and that's because you thought I might be pissed. Because I never showed you this place in the first place, so I guess you assumed if I wanted you to know, I would have told you. And if you're not sure if I know, then assume I don't, because I have clearly been wrong in my assumptions of who reads here. I was stupid enough to think that only three or four people (aside from my family) actually read along. So send me an email. If you know me, you have my address. And if you're one of those small handful of people I actually sent the link to, and I told you it was top secret information, and not to be shared with others, but in the end you found it so deeply fascinating or heart-breaking or both, you decided to pass it on to someone/s, I also don't hate you. Just 'fess up. Because this is all now doing my head in. And my head is messy enough as it is. I want to know who knows about this place.

This is the internet. This info is readily available to anyone who wants to come searching for it. And even though I can hit the magical delete button at any given moment, so it is gone (as gone as can be gone in this day and age), at this very moment, it is all out there now.

Signed,

Sally, AKA Bitter and Bereaved Mother who promises to have something much more interesting to say next time. And I think I might just put a bit of time between now and my next time.

35 comments:

  1. This is your place Sally. I love the rawness and honesty. If you decided to make it private that is ok:) You do whatever you believe is going to help you.

    I love you, I love you, I love you!

    x

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  2. Sally, you know I read regularly, even though I don't comment much. Your recent post on fate and chance very sharply detailed a lot of things that dance around in my head. I'm like your first letter writer, glad that someone is able to spell it out. It gives me more time to think about a topic, if it is already defined.
    Thanks

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  3. Wow Sally. I wish I'd written this post. I feel the same way. I don't mind people reading it, but I think they could at the very least acknowledge that they are.

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  4. Oh yes, me too.... I don't mind if people I know are reading my blog, but I wish they would fess up and tell me!

    As you know I tried making it private, but missed being in the loop too much!

    xxx

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  5. sally, i love your posts. you are so very honest and raw. i think you need to ask yourself if you began self-editing and censoring, would you feel this was therapeutic for you? would it be the same experience? for me, i need to be honest in my writing, or i am a liar everywhere.

    i am sorry people feel the need to criticize your blog, your process and your grief. i do not think that is fair. if i read the blog of someone i know in real life, i would use it to try and understand their grief so i can be a better friend. and i would tell them how amazing it is that they are writing, and working through their grief in a community of such supportive women. but as it is, i am tell you, you are amazing, woman. keep writing. please.

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  6. If you find yourself self-censoring then maybe something has to change.

    You write so honestly and right from the heart and I hope you carry on exactly like that.

    xxx

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  7. Sally, this is for YOU, first and foremost. And, as I am in the read-every-word club as well, I can attest to your writing skills. But this is about grieving and it IS messy.

    We love you. I love you. I love Hope and always will.

    xoxo

    ps - my verification words is "pented". Interesting, no?

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  8. Sally,

    Your tribute to Hope on these pages is beautiful. Your writing is true and heartfelt.... we all appreciate that. Keep it up.

    L

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  9. Keep on writing Sally, we love you in all your honesty. xoxo

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  10. Interesting. I have often wondered who reads my blog. I have only actually shared it with my sister, but some other people know I blog and I wonder how easy it is to find. I don't know how I would feel about a wider audience of IRL friends reading it. As you said, I think these blogs are too ugly for the uninitiated to read. But at the same time, I wish I had the courage to share it so that maybe a few more people could have a better understanding of me.

    Please don't censor yourself. Your writing is beautiful and resonates so much with me. I would hate to not be able to "hear" you anymore!

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  11. Sally, keep doing what you are doing. Thinking of you and Hope.

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  12. I, too, wonder about who reads my blog. I know that some friends and family do, and I have yet to reconcile with myself how much to share, fearing that I will scare them if I let out some of the anger and sadness.

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  13. Hi Sally,

    I am one of your readers who has never lost a baby myself. My sister had a very close call with my niece, and my sister-in-law lost a baby at 23 weeks due to defects that were "incompatible with life."

    I found your blog through a link on Ezra's Space, and I found her blog through a link on Open Salon. I have been drawn to the writings of the "babylost" mothers. They tell stories of incredible love and courage, and they remind me that my four grown children are a gift that should not be taken for granted. MY husband and I have gone through many trials and tribulations over the years with our children, but your experiences remind me that I have been extremely fortunate. I need to cultivate the awareness of gratitude.
    I wish you well.

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  14. I sort of regret telling people IRL about my blog. I find I have a lot less to say recently because I know they're out there. This post deadbaby journey with no-live baby has gone on far too long for me to have anything but pessimism to relate. And I hate their pity. I hate that they're probably wondering when the hell I'll move on from this.

    Anyway. Hope you can continue to be yourself, S.

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  15. I am also a reader who hasn't lost a baby. Sometime, many moons ago, I found that Stirrup/Jester blog list. I don't know how I ended up there but I bounced around from blog to blog,ending up on all kind of different blogs.

    Somehow I ended up in a few of the blogs of moms who lost their babies. I couldn't even tell you how that came to be, but I read..clicked on side links, read some more.

    Some of the voices really moved me, some of the stories have stayed with me day to day. I started following a handful
    of the blogs. I don't know why certain people or stories have compelled me to not just follow but to really care.

    I have never commented on a single one even though I get my coffee in the morning and I read to see how everyone is doing.

    I don't comment because I guess I don't want to creep people out or have anyone think I am weird. I haven't been through this, I haven't been through infertility or adoption, and I have two little boys who are 3 and 17 months. I guess I always feared striking the wrong chord, saying the wrong thing or somehow making someone's pain worse.

    What I would say, what I will say here for the first time is:

    You don't know me but I read everyday. I think about your little Hope and think she is just stunning. Sometimes when I am outside with my boys and I see an out of place ladybug or a baby bird I think about her, or the other babies I have read about. I hope this doesn't come off the wrong way. I care enough to get my coffee and read what you are going through, even if some of the words are "ugly" it doesn't matter, when they are beautiful remembrances of your daughter, I rejoice. I don't know you but I walk with you in following your blog. I don't know how to explain it so I have never commented. More than anything I hope this doesn't come off the wrong way.

    I blog myself about my little boys so I know about reading the stat counters and wondering who is caring enough to check back day after day. I feel I owe it to you to explain myself.

    Thank you for sharing you story.

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  16. sally, you are so beautifully real and honest. that is what this blog thing is all about, isn't it?! well for me it is. i hope that doesn't have to change for you.
    i too would like more people who've dropped by my blog to leave comments and would like to know who is reading and sometimes i wonder if i am just too much. but i know it's my truth. it's not all of me, but it's big, it's a fucking awful thing to lose a baby right when they are about to be born. so i believe all of our feelings and writings are so valid, so justified. and so honest.

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  17. I'll just be blunt and say that your friends should remove their egos from this and realize this is about you, Hope and Simon. I hope you keep writing, Sally. Uncensored, raw, ugly, beautiful, sad, funny, however it may be. We're with you.

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  18. Sally, I'm hoping you can still feel freedom to write as you wish, despite the onlookers. I couldn't handle people in real life reading my blog. You have strength I couldn't muster. Peace.

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  19. To the two Dianas, especially, thank you very much. And if you ever want to email me, I'd love to hear from you. My email is in my profile. I hope you both stop here again so you can see this.
    These words all mean so much to me, more than most will ever realise.
    Sally

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  20. Sally, I agree with everything that has already been said here. As I've said, I don't always comment here but I love being able to read your words.

    This here blog is just one example of your generosity in sharing a glimpse of your world with others and shows such great courage.

    But again, this is YOUR blog; your space. And I will respect whatever you choose to do with it, on it and in it.

    Love Susie

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  21. Hi Sally,
    I found your site off of Matt Logelin's website. I have not lost a child close to due date yet I have had 4 miscarriages and one live birth which gave me my daughter. Your blog actually helps me with the pain I still feel about the miscarriages. I think Hope is incredibly beautiful and I'm hoping for such happiness for you and your husband. Keep blogging and being as truthful and open as always!

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  22. I found your blog tonight. I just wanted to say I hope you keep posting. So many mama's have lost babies and its not fair that we can't speak up.

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  23. Sally, thinking of you and your precious angel Hope love Dana

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  24. Have you just noticed, that blogging the truth in this post and refusing to censor it and calling everyone out, has gained you getting to hear the truth from some of the people who love you and want you to keep writing, and not only that, but writing just as you did before?
    You got your answer. You should keep it up. It's for you not them, and you need healing, and our encouragement, and everyone's understanding.
    You have made me feel special on my terrible days. I would hate not having the opportunity to return the favor from time to time ;)
    LOve from Lindsay xox

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  25. "Close the door. Write with no one looking over your shoulder. Don't try to figure out what other people want to hear from you; figure out what you have to say. It's the one and only thing you have to offer." ~Barbara Kingsolver

    I have seen your comments on others' blogs...we visit many of the same places. This is actually the first time I came over to your blog. I am so very glad I did! The above quote is one a friend sent me after I received some nasty comments on my blog.

    Keep doing what you do! There are many of us in the blog world who find honesty and candor quite refreshing. As long as you keep putting it out there, we will keep reading. Everyone else is more than welcome to go somewhere else for a read!

    ((((HUGS)))) to you!

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  26. I am expecting my first child in six weeks and, while I know it does not solve anything to worry, your blog helps me deal with my constant fears and worries about having a healthy baby. And maybe what will happen if I don't...

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  28. I've intended to leave comments on several occasions but somehow never seemed to have the words. I found your blog by leaping through the blog rolls of other babyloss mamas. I come back because Hope is beautiful and you are honest... and because I'm hoping for that new pregnancy for you.

    I've just started blogging myself and it's terrifying. I won't be mentioning it to people in real life for a while, if ever. It's a place where I can think about my stillborn baby daughter and, as you say, sometimes that thinking is messy and painful and hard to stomach but we need it.

    I know others have said it - you are an amazing writer.

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  29. this post is very interesting. i know chris had a tough time at first b/c he really wasn't writing for anyone but himself. now knowing how many people read, its just crazy- do we edit? i don't think so. i think we need to just speak from the heart, that is why people come back. its what we need to get through this and i wouldn't want it any other way.
    i have been thinking a lot about this, though i haven't gotten any shit from anyone about what i write. i think you need to keep at it the way you are writing, if this is helping you through it, then screw everyone!!
    love you lots,
    xo

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  30. Hi,

    You don't know me either, but I do like your writing so I return here to hear more. My wife and I lost our baby girl full term to Trisomy 18 almost two years ago. Whilst not as full of angst as yourself I do on occasion take some visceral pleasure in the way you express yourself, wishing I too could do similar.

    T.

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  31. I am going to come out lurking. I read your journal from time to time. I lost my beautiful daughter in march 2008, I am coming upon her one year and it gets tougher and tougher and i can't write nearly as well as you do so I don't tend to write about it in my blog but your blog is wonderful and I understand if you want it private but I love to read it.

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  32. Ugly no way, more like Love for Hope, the sheer emotion that goes with it is true and to me it's what freud did he wrote about his child dieing, his love for the child, it was what he called his grief work...

    So what if friends are reading it, to me perhaps it's about empowering the world in educating people about acknowledging our babies lives, how much heartache and love that is bundled up with our babies...

    Censorship - to me so many peoples lives are censored (they live this skippity hoppity drinks and rarah life in the sun- nothing will ever go wrong) so it makes them so ignorant to peoples emotions and self centred in a way..only Vaccous people wouldn't understand the sadness and to me they wouldn't understand the love..so keep writing, you are not only writing about love for Hope but helping so many of us deal with our own emotions..

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  33. Henri Nouwen:
    When we honestly ask ourselves which person in our lives means the most us, we often find that it is those who, instead of giving much advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares.

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  34. This is your place and I love to read it. Being just up the road in Brisbane I feel an extra close pull toward you. I dont'comment much and I never write anywhere as much as you have and do..but PLEASE don't go away..or if you do CAN I COME TOO?? and please don't censor..it defeats the purpose of the whole thing i think. Much love Angie

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