For too long now I have been banging my head up against a brick wall trying valiantly to get people to understand my pain. To Get It. As of now, I officially give up. My attempts are clearly futile and a massive waste of my time and energy. I'm stressing too much about things I don't need to stress about. I have much bigger things on my plate right now and that's a) grieving the death of my daughter and b) trying to make her a sibling, which after today's ultrasound, might be a bit harder than we'd hoped. But it is cool and I'm not going in to it (yes, I believe that is censorship). All is well, for the most part. We got much more good news than we did "bad" news, and the bad news might not even end up being bad news, more like "slightly inconvenient" news. So that's that. Moving right along.
When I say people either "Get It" or they don't, there are two versions of "getting it". There is the "getting" the the oh-my-fucking-god-I-will-do-anything-to-protect-this-precious-child fierce mother love thing, that only another mother can know and the "getting it" which relates specifically to knowing the all-encompassing and soul-destroying pain of losing a child.
Someone said to me in an email recently that when we become parents, and by that she meant from the moment of conception onwards, we wear our hearts on the outside. Suddenly we are open to experiencing pain and joy in all shapes and forms. I have felt more pain and more joy in the last 12 months than I ever knew possible. The joy of the pregnancy was unparallelled to anything in my life, and now likewise, this filthy grief is like nothing I have ever known. There is just nothing on Earth like it. As much as I fill this space up with so many words, I really wont ever have the words to properly describe this pain. It is simply beyond words. The stuff of nightmares yet for me it is not a nightmare, it is my daily reality.
Some who do and don't get the "mother love" bit of it have been good, some have not been as good. Some have surprised me in good ways, others have let me down. That's just the way it goes I guess. Cest la vie.
But as I have said before, no one can GET the grief that follows the death of a child. No one. Unless of course, you have been there - and then, and only then, can you ever Get It. If you don't get it, relax and breathe easy. You don't want to Get this. And just pray, if that's your thing, that you don't ever Get It. This is not the side of statistics any parent wants to end up on.
It seems some are a bit jealous, for lack of a better word, that I have not been able to turn to them for help getting out of this pit, because when life had previously had got me down, I'd always knocked on their doors. I soon discovered while working through this immense and devastating loss that I was going to have to look elsewhere to find the love, understanding, compassion, and patience I needed and craved. It is not to disrespect others in my life or reflect badly on their personalities; this problem was simply out of their league. Not something that could be fixed over an afternoon chat with a cup of tea and a muffin. Or over a couple of wines with dinner at some trendy inner city restaurant. This problem is obviously much bigger than that. Which is why I had to call in the big guns - bereaved mothers from all over the world on the mysterious world of the interwebs. It is the last place I thought I would turn but now, I can't imagine where I'd be without this wonderful web of support. It was just days after returning home from hospital that I found myself here. In fact maybe even the day after. I felt so desperate to find others who had walked this path. I soon learned, women like me were everywhere.
People who feel frustrated that I can't turn to them and who feel like they wish they could help me, should not worry. Because if you were able to really help me, that would mean you had been through this. And it goes without saying and of course is horribly cliched, but I could not wish this crap on my worst enemy.
Some of the people in my life who have not lost a child, whether they are parents or not, have simply been fantastic. They have stopped trying to fix me and helped me in other ways. I know these friends will wait for me as long as it takes. I know they will remain on the sidelines of my life, which will only be a temporary measure, until I'm ready to join the land of the living again. They help by just letting me be. By listening. By giving me the space I need or by letting me vent for hours and hours on end. They are just treading easy around me and letting me call the shots.
I spent the entire day with two of those friends yesterday, with their 15 month old babies and they let me talk and talk and talk until I nearly exploded. They probably nearly exploded too, but they never dared show that in front of me. They have made it perfectly clear they will make exceptions for me, they will allow me to express myself honestly and openly without taking things personally and they will walk beside me in my grief. Just seeing the tears in their eyes again yesterday shows me just how much they care. I'm lucky to have some very wonderful people in my life.
As the very wise Elizabeth McCracken says in her brilliant memoir (if a book about the full term stillbirth of your first child can be brilliant) An Exact Replica of a Figment of My Imagination, "grief lasts longer than sympathy". I know people are still very sympathetic to our situation, but the grief I feel far outweighs the sympathy I receive these days. And that's ok - I would not really expect otherwise, because everyone has their own life to live. I know I would have been guilty of this in the past. Sending a card in the first one to two weeks, attending the funeral, then dropping off the face of the earth, apart from the odd email here and there to check on said grieving person's well-being. But it does leave us, the bereaved, in a difficult situation. Because while life moves on for others, we remain stuck and in almost as much pain as the day the tragedy struck our lives. It may as well be August 18. But it is not, it is March 18. How the crap did I just hit the seven month mark? Wasn't it like yesterday I just said it was six months? The time thing is really crazy.
And I still stand by the fact that our losses, the deaths of our babies, are very unique losses to grieve. This is not a grandfather who lived well in to his 90s, who fought in a World War, who lived on several continents, who had children, grand children and great grandchildren. This is not even a mother who while she may have been cut down in her prime and died far too young, still married, travelled, built a home and a family. Other people leave behind memories. Possessions. Dental records. Tangible proof that they existed and that they were real. Sometimes I wonder if Hope was a figment of my imagination. My life had been turned upside down anticipating her arrival - as we patiently waited to go from duo to a trio, now things are just the friggen same, Just the two of us and the damn dog. Except with these gaping holes in our hearts and mega sad eyes. And the loss does become unique again when we talk about a child who never drew breath, and a first child at that. I'm mourning the fact that not only did I not get to take my daughter home, I did not even get to see her open her eyes. This wee little baby never laid eyes on her mother. I said recently to a friend I was worried Hope would not recognise me in "heaven" but she made me feel better by saying well "at least she will know your voice". Yes, I guess that is something. So while I also grieve her loss intensely, with ever fibre of my being, I also grieve my lost motherhood and my purpose in life. It is a complex and multi-faceted loss. This is far too complex for me to comprehend most of the time, so why should I expect others to comprehend it. So now, I'm going to stop trying to make others understand. Because you don't know what you don't know.
The old cliches are right - we all deal with loss differently. And you don't know how you will react until it happens to you. I couldn't have told you seven months ago how I would have dealt with this. But now, seven months on, I can't question any of the decisions or choices I have made. This is just the way my story has unfolded.
Sometimes I wonder what people really expect of me? I think it is a god damn miracle I actually get up each morning and eat three balanced meals a day. I can go to the supermarket. I can visit friends. I can speak on the phone again. I even travelled overseas! It is miraculous, to say the very least.
So for now, I give up. I'm not going to fight it anymore. I know others out there agree with me. I know others out there are going through this hell with me. I know more than anything right now, I am not alone - far from it. I know most of this post is repetitive, but hey, it's my blog and I can and will say what I want. So from this moment on, I will stop banging my head up against a brick wall because my emotional reserves are all but spent. And I'm just so damn tired because missing her every waking moment of each and every day is exhausting. I need to dip in to those emotional reserves right now more than ever to try and drag myself forward and to rebuild my shattered life and broken dreams. If you don't get it, don't worry, I wont try and make you Get It anymore. And trust me, it is a very good thing that you don't Get It. The best thing ever in fact. Because if you don't Get It, all of your kids are alive and really, that's all I'm asking for. And it is sadly something I will never get. One of my children, my beautiful first born wee baby girl, will always be dead. I wish I never had to Get that.
Wild Garden Questions
23 hours ago






I wish you and I didn't have to 'Get' it either. It is a loss that truly no one with all of their live children can understand. I can only imagine how much harder this is when it's your only child that died.
ReplyDeleteI know the wall you speak of, and I stopped. Banging my head that is. It's a good thing to do.
Losing a baby is like losing a leg. You will always walk differently. You may have a prosthetic, you may get a wheelchair, but you'll never walk in the same way that you did before. No one can know what it feels like to lose a leg either, unless you've lost one yourself.
I hope my little analogy makes sense to you.
Sending you warm thoughts and prayers my friend.
Love Lindsay
i used to try to make people face that my baby was dead. i told everyone i had a dead baby if they dared ask about my children. then it became awkward, and then i realized i'd rather pretend to be one of the normal ones in real life and just keep the rest to myself. no, people don't get it. and they don't have to. there are many things i don't get, and thank god there are so many things i've been spared. that's how i have to think of it anyway, otherwise...well...i'm just so tired otherwise.
ReplyDeleteOh yes, if only the one's closest to us would "Get it".... not truly get it of course. As you say, truly "getting it" would mean they would have to live this hell and I wouldn't wish this on anyone, but there certainly is some comfort in someone who validates our feelings, our loss and our sweet angels.
ReplyDeleteI'm glad to hear that you have some of these wonderful people in your life.... the others, well to hell to them.
hugs,
Lea xo
I Get It - and it sucks for all us that Get It. I agree with a lot of your post, Sally. I have friends who want to support me but how can they when they have never been there?
ReplyDeleteReading and just nodding at every word Sally. There are only 2 people in my life who completely and totally get it, and its because they have both been so consistently present and never judged, pushed, encouraged...they are just there and letting me be where I am. What a gift.
ReplyDeleteI hit that wall a while back, and I gave up hitting my head against it too
ReplyDeleteWhat surprised me the most, over everything else, was that the people in my life who were least supportive were those that had their own children, and the people that were most supportive were those who didn't. I have given up getting those who don't Get It to understand- I think it's just too painful for them to even try to go there.
It's sad that we all do Get It, but thank God we at least have each other.
It is freeing when you let go of those who aren't there for you and focus on those that are. I spent a lot of my time angry and frustrated with those who didn't and now, I just try and be grateful for those that although don't get it altogether, have remained and aren't trying to fix anything. I`m so glad you have those people in your life, Sally.
ReplyDeleteGood to hear that you are stopping banging your head against the wall ... as hard as it is, at some point, we all have to stop.
ReplyDeleteIt would be nice if everyone would understand that grief never goes away, it only changes, and that losing a child that never took a breath outside of the womb is just as painful as one who did. But they don't, and they won't ... and at some point, we have to be confident knowing that our journey is ours alone.
Thinking of you.
I wish no one had to Get It. I'd give a lot to go back to my previous, mostly clueless state, myself. But I'm glad you've stopped fighting this particular losing battle. Those friends who stand by us, wait for us and with us, who don't try to "fix" us - how dear and valuable they are.
ReplyDeleteyes, yes, yes. no one gets it like we do, how can they? but like you said there are certain people who can be with us unconditionally and let us talk and talk and cry and cry. i'm grateful we both have a few of them around. and each other and our babylost community. and i am so proud of you for getting up, eating, visiting friends, shopping. you have chosen life. grieving & healing is a full time job.
ReplyDeleteThere is nothing I could add to what you and other commenters have written.
ReplyDeleteI just appreciate your honesty and courage in sharing the truth.
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ReplyDeleteFor me, it hasn't been quite as cut and dried when it comes to the People Who Get It category. I know somebody in real life who delivered her stillborn son about two years ago, then went onto birth living son one year later. She's definitely been supportive and empathetic. But, I oftentimes feel that she thinks I'm crazy for continuing to mourn E. She's even said that once she gave birth to her living child, she 'got over' the loss. I just don't see that for myself. And, I don't read that in blogs of those who go onto birth a living child.
ReplyDeleteI hope to meet more people in real life who Get It.
This sounds to me like a huge step for you Sally, and hopefully one that will bring you a little more peace.
ReplyDeleteVery few people that I know out here get it, as much as I tried to explain (that wall again) and even one that should because she's been through it just doesn't. And I'm glad that they don't.
Ray does, my Mum does and one friend does and all of my new family here do.
And that's enough for me.
Thinking of You and Hope and trying to unravel the cryptic ultrasound paragraph!
xxx
It's hard when you realise which category people fit into. My parents fit into the 'don't get it' category and that is so depressing.
ReplyDeleteLooking forward to meeting you today! Now I have to go clean my house...
I fell out with a friend of mine after my twins died because she said some insensitive things to me.. Not because she is nasty, but because she doesn't 'Get it' She has 2 live healthy children.. She sent me a lovely card apologising and I gave her a call.. During this phone call she was honest and said it made her uncomfortable speaking about my dead babies.. I explained that I am sorry she is uncomfortable but these are MY BABIES.. Just because they are not here in front of us doesn't mean they never existed.. Bottom line is if I can't feel I can speak about my children without making her uncomfortable I probably wont speak to her anymore.. And what a shame.. I feel after 14yrs of friendship SHE is being selfish because she puts her own feelings of being uncomfortable before wanting to comfort and be there for a friend who has just lost 2 children..Am I being unreasonable?? I don't know..
ReplyDeleteOn top of everything else Sally, can I just add to your friend's comment that Hope knows your voice...
ReplyDeleteHope knows more than that. She knows your inner soul, and nobody else knows that, not even Simon. She knows what it feels when you go through your emotions... anxiety, happiness, laughter, tears. And I imagine recognising you when you walk into heaven, is more about recognising your soul, because your body as such is no longer with you. So, I think she will be the very first to recognise you. She will 'feel' you coming, even before parents, grandparents, friends, anyone passed before us does. I imagine a crowd of people, milling around, chatting amongst themselves (as angels no doubt do) and out of that comes a little girl... flying amongst everybodies knees, jostling to get out. "Mummy!!!" as she runs to you open armed.
I don't think you need to worry about her not recognising you darl.
xxx
Me again....
ReplyDeleteWould you be ok with me mentioning you on my blog? I would just use your blog name, and only link to you if it's ok. Could you email me and let me know? snarkybelle@comcast.net
If you don't want me to, of course it's perfectly ok! I am just working on a post about the support and strength I have found through blogging. Thanks!
A year(mar 28) later and I'm still hitting that wall. I don't know why I'm even trying to get them to get it.
ReplyDeleteAs I've said to you before, Sal, I can only imagine what it feels like. I can imagine it pretty vividly, vividly enough to suck the breath from my chest and make me physically hurt. But I know even that is only a pale approximation of what it really feels like.
ReplyDeleteBir's comment brought me out in goosebumps. There is no doubt that Hope knows you intimately. You were her world, her universe, her earth and water and sky and stars, for those nine months. If there is a heaven, or something like it, she would recognise you in a heartbeat just as you would her.
The ones who feel "jealous" because we can't turn to them anymore ... yes, I've been trying to think about this but hadn't got it clear in my head. That's it exactly. My support network is utterly different from how I might have imagined had I ever envisaged this (I NEVER envisaged this). Our energy is limited by our grief. We owe it to ourselves to be careful where we spend it. I think you are wise to officially give up on the ones who can't get it.
ReplyDeleteyes yes yes, i get it and i could have written this. i am sad my baby boy could not see his mommy or daddy ever, or that i couldn't see his eyes. i am done worrying about all those in our life who can be there for me and will cherish those that can. i'm so glad you are going to try to do that to. it may offer a bit more peace. 7 months, i can't believe it. i'm almost at 6 and i'm shocked. i don't know how i got here.
ReplyDeletei've been thinking about this lately, how if we really got the enormity, the scope of what happened to all of us, we would be in pieces on the floor. but i think our body allows us that little bit that keeps us sad and grieving and holds enough back to allow us to live our life somehow. even with this much time having passed, i am not better, i don't feel less sad, i don't feel any more healed.
but i do know that you and the rest of our community are keeping me sane. thank you sal.
I'm there with you, Sally. I've been amazed by the people who Get It and those that don't. Some were such a surprise and some a complete letdown. I wonder which side I would have fallen on if this had happened to a close friend of mine, instead of me, and then I feel guilty. Ugh.
ReplyDelete