Wednesday, November 19, 2008

If only I were a somebody

I know most of you don’t know my full story and what happened to Hope, but I’m putting it all together to post over the next few weeks/days.

For now, I rant.

I can’t help but wonder if I was someone more significant, if I mattered, if Hope mattered, she’d be here.

Bear with me here.

There is a certain strawberry-haired, tall, Australian actress who for the most part, I was pregnant with at exactly the same time. We all know how her story finished up. Nine beautiful months carrying the child, then the happy ending we all assume we are going to get.

But for me, this is obviously not how it turned out. Hence this here blog.

I was past my due date, in labour, in pain, at hospital but sent home. I was treated like a number. Just another first time mother, probably overreacting at the first sign of a contraction, I wasn’t far enough along, so I was sent home to battle through my early labour alone and without any medical help. Guess they just really needed that bed for someone else, someone else bursting to push I suppose.

I’m sure this particular actress wouldn’t have been sent home if she were in my shoes. She probably had her obstetrician move in with her at her country ranch from 36 weeks onwards, had an ultrasound machine at her home (like that twit of an ex-husband of hers) and probably had an ambulance parked out the front for those last few weeks ready to whisk her away at the first sign of the baby making an appearance. There would have been so many people making a fuss over her, making sure everything was perfect.

Jealousy is raging inside me like a wild, out of control bush fire these days. As if it isn't hard enough seeing the bulk our friends blissfully happy with their children or pregnant and innocent, but seeing her lying peacefully cheek to cheek with her cherub-faced baby splashed all over the front pages of newspapers lately, just makes me want to barf. I deserve what she got. I do matter. Hope matters.

I realise I’m probably being completely irrational, but today, this is how I feel. That if I was a somebody, someone people were interested in, not just another woman at a big, busy and over-burdened public hospital, Hope would be here, and I’d have got my happy ending.

Someone should have taken more notice of me.

I kept hearing the midwives say they can know a lot about a labouring woman just by the tone of her voice on the phone. So why is it then, they couldn’t “hear” the bacteria, harmless to us adults most of the time but fatal to newborns, creep its way in and kill my daughter?

All it took was for one of them to say “you know what, just come back in and we’ll check you over, better to be safe than sorry.”

But I was told to stay at home and wait. And wait I did. And four days past her due date, she was dead. Five days past her due date, she was born and our world crashed down.

Had I gone back in, they would have been able to see my baby was in distress. Distress. I hate to even think about my child being in distress, inside of me no less, right under my beating heart. They could have delivered her in a hurry. I realise the infection still might have been too severe and she may have died soon after birth, or been very sick for a long time. But then again a NICU stay and course of antibiotics might have saved her, and phew, wouldn’t we count ourselves lucky that we acted fast and caught this infection in time. But we’ll never know and I’ll always wonder. Always.

I think medical complacency had a lot to do with Hope’s death (as well as a nice dose of maternal oblivion) but I just wish someone had been more thorough with me. Or that maybe, at some stage during the 40 weeks, someone had said “you know babies can and do just up and die inside women at the end of pregnancy, quite often, without warning or any symptoms, so just be vigilant and come to hospital if you’re worried about anything.” Sure this would have scared the hell out of me, but it would have made me more aware. Four days past my due date, I was more worried about me and the pain I was in. I wasn’t worried about the baby. She was a sure thing. Until she wasn’t.

As I’ve come to learn with stillbirths, it is better swept under the carpet and not spoken about, even by the medical professionals taking care of us, who obviously see these sorts of thing more than we realise. Just deal with it when and if it happens, which means most of the time, completely blindsiding people. Doesn’t happen most of the time though, you know 99 per cent of babies are born alive. It is just that one in 100 who doesn’t make it in to their family’s waiting arms. I thought it only happened to “other people”.

Now I am one of those “other people” and I don’t like it.

Being sad is hard enough. I wish I wasn’t so angry, too.

15 comments:

  1. Your story breaks my heart. I too was sent home and told "not to worry" even though I just instinctually knew something was wrong. It gives me no satisfaction in knowing I was right, of course, but I too have thought exactly what you have (if I were someone important, would they have treated me this way), on and on. Of course, then there are the inevitable "what ifs" that run through your mind at 4 in the morning. Our case was so poorly handled that they did a review and are going to (hopefully) change procedures. I just hope it spares one woman going through our agony.

    I said to them, it's almost like they treat your first baby as disposable and say "better luck next time" or "next time, we'll really look after you and be more diligent", well what about the first time? Isn't one baby dying too many? And I might not have a next time!

    Long comment, but all to say you're totally normal and I'm so sorry.

    ReplyDelete
  2. I think anger is a huge part of it. And medical docs not paying attention, not telling us everything we need to know, and like monique says, the first one doesn't get enough care if there are no risk factors.

    I too felt like I was oblivious to the danger that Serenity was in and it breaks my heart that maybe I could have done *something* and it *may* have turned out differently.

    All that you wrote rings so true.

    ReplyDelete
  3. Sally,

    You should send this post in to those midwives who think they know everything.

    I am so angry with you. What if's are evil, I wish I could press a magic button and turn this terrible mess around for you.

    You are not being irrational at all. You can't rant as much as you want. I hope you can see you will have so much support and understanding here. You just be however you are :)

    Love you

    Carly x

    P.S Hope matters and so do you.

    ReplyDelete
  4. I have felt the same way many times. It doesn't seem irrational to me at all. Have you talked to your midwives about this?

    ReplyDelete
  5. We had a meeting with the head of obstetrics and the director of nursing at our hospital. while they are not admitting fault, they are admitting things could have been done better, and as a result, they are drafting some new procedures around women in early labour. fat lot of good it does me now, but hopefully more babies can be saved this way.

    ReplyDelete
  6. It looks like we're both about three months into our losses. I've been surprised by how angry I am, even though supposedly there was nothing anyone could have done in our case. And all of those questions in your head about things you or someone else could have done differently? They hurt. If ranting helps, even a little, rant away.

    I'm so sorry you lost Hope.

    ReplyDelete
  7. the writing feels good doesn't it? i feel so angry with you as well. you have every right to be. with our situation there is no blame, that made it hard to not have anyone or anything to be angry at. i'm just mad at the unfairness of it all. i also hate that my doing a homebirth could now be looked upon as the reason for Silas not making it. but whatever, no matter what the reasons, we don't have our babies and its just so sad.

    i started working again this week and as scared as i was to face the kids again, they've been so sweet and it was better then i thought.

    but now i'm home and thinking of you and all those other babyloss moms and how sad and angry we all are and how helpless we all feel. it sucks. no other way to explain it.
    i'm so glad we found each other sally. we'll get through this. just keep writing.

    ReplyDelete
  8. The anger can definitely be tough to deal with at times. It's perfectly rational though and I think it's good to get angry.

    So glad you've started blogging S there are such lovely women here.

    ReplyDelete
  9. Just wanted to say I'm happy to see you here, S, in deadbabyland - as screwed up as it sounds. Because, really, I wish you weren't here at all. I wish Hope was with you and you were still ignorant to this thing called stillbirth.

    I get the angry part. I'm still working on not being angry. Even now. Big hugs to you. XO.

    ReplyDelete
  10. I am just so sorry and know some of those feelings oh so well. The anger, the panic, the what if's the endless what if's. I am also so glad that you have found us all and write and rant as much as you like. Its all NORMAL here. I am in Brisbane too so if you ever want to call. xxx

    ReplyDelete
  11. The anger is so intense isn't it? In this last week or so, that's the emotion that has taken over for me too...and I'm completely ok with it. I was never an angry person before losing Ezra. But now its the only way I know how to be.

    ReplyDelete
  12. This post really hit me. I was pregnant at the same time as my sister in law - we were due six weeks apart. Every time I see my nephew I'm reminded of what my daughter Sienna would be doing now. I have to smile and pretend it's ok because I'm his aunty. He's a gorgeous little guy but I can't help this terrible feeling I get when I see him. I can't even describe it. I know it's not directed at him in any way but it's a deep sadness tinged with jealousy, regret and anger.

    And I know what you mean about that particular actress - it's a constant reminder of your loss. And, similar to the strawberry headed actress, my sister-in-law had suffered a couple of miscarriages and everyone felt so sorry for her and then so happy for her to have this baby. Meanwhile I was 'lucky' that I already had two kids so my loss was sort of swept away while the extended family focused on the arrival of this other baby. My mother-in-law even said that she was 'glad' it was me and not the other daughter-in-law because she knew I would cope better. Needless to say the family relationships have strained somewhat!

    Thanks for helping me feel the anger which I often try to hide.

    ReplyDelete
  13. Jayne I was due the same day as one of my best friend's sisters. She had her baby the day after our due date, the date I first went in to labour. I got her text annoucing the birth of her 10 pound baby girl after a very stressful and high risk pregnancy (pre-e, constant nausea and bed rest. Four days later, I delivered Hope silently.
    I have not seen this girl, and I'm no sure I will ever be able to see her. She will forever represent everything I lost. And she had to have a girl, didn't she!

    ReplyDelete
  14. I'm just starting out reading your archives - over here from Catherine W's blog, where I saw your many comments.

    I just wanted to chime in, albeit late, to say that I fully understand this post. It really pains me that I was dismissed three times during the week before my son was stillborn. I was concerned about lack of movement, I knew something was wrong, but they dismissed my concerns as his heart rate was fine... until it stopped and it was too late.

    We did write a letter of complaint, and the hospital did apologize for their crap level of care... but this will only ever be of very limited comfort - nothing can bring our beautiful babies back. I'm so sorry about your beautiful Hope.

    ReplyDelete
  15. Oh Oh!

    Penelope Cruz had her son right after I delivered my first-born.

    I look at her and can only think of my child.

    xo

    ReplyDelete

Thank you for stopping by.

 
Design by Small Bird Studios | All Rights Reserved