Tuesday, December 16, 2008

Out of control

I feel like my daughter was murdered. And that the perpetrators of this heinous crime are getting away with it, without the punishment a crime like this warrants.

They walk the streets, they participate in life, they laugh, they love, they function in society in a normal way.

Meanwhile, I have been left totally bereft and wandering around in the dark, lost confused and alone. No baby, no motherhood. All my plans for the future totally shot to shit.

No child should die before they are born, in what is supposed to be the safest place on earth - our wombs. However, sometimes these deaths cannot be prevented. This is a tragedy, and I have read about so many of these tragedies with heartbroken mothers and fathers trying to pick up the pieces. But when I child dies in utero and it was preventable, then it is an absolute fucking catastrophe. If Hope had taken just one breath, we'd have had an Coroners Court inquest in to her death. People would have been asking questions, those who could have been deemed even partially responsible could have been appropriately reprimanded. However, given she emerged without a heartbeat, she is simply written off as bad luck - better luck next time. Simply a "fetal demise". Words that make me feel physically unwell. No one said they were "sorry" to me, as none of them wanted to end up with a law suit on their hands. They are all treading very carefully around me now. One slip up, and I call a lawyer.

I have written email after email to the hospital in the last four months. We have had meetings and phone conversations. My mother, mother in law, sister and close friend have also made contact with the hospital to express their outrage and deep sorrow. I continue to pester them and to fight for change. I am determined to know my Hope's death was not in vain. I am determined to know no other first time mother in early labour will be treated the way I was. Being left to labour at home for days on end without any physical examinations. This was the difference. Time killed my daughter. Yes the infection made its way it, but it did not have to be a death sentence. She just needed to be born a day or two earlier. Those days I was still past my due date and still battling through my persistent early labour. I sound like a total fucking broken record, I know.

****************

I have been busy the past few days opening up and seeing a few more people. A friend and her eight month old yesterday and a work friend last night for dinner. First time I have seen either of them since the funeral. I feel bad, as the friend who came with her baby during the day did not know why or how Hope had died. So she'd spent four months in the dark. We were actually due to have dinner with those friends the day after my due date, the day I first went in to labour. This was arranged as a bit of a joke, as I hoped we would have to cancel thinking I'd be in labour, or with my newborn. When her baby was born eight months ago, we'd been out for dinner to this same restaurant the night before. A spicy Thai restaurant. We joked the curry must have kicked her baby in to action. In the end, I didn't need curry, Hope had already made up her mind it was almost time to be born. I texted this friend on the way to the hospital to say I would have to cancel and that I'd be in touch very soon with our exciting news. She got the call three days later that Hope was dead. And she's obviously spent four months trying to make sense of something that make absolutely no sense. Much like everyone I know has.

With the work friend I saw for dinner, I had a hard time telling her I was pregnant 12 months ago. It weighed heavily on my mind for weeks on end. She's almost 10 years older than me and has suffered through two miscarriages. She is so desperate to have a family. Yesterday when we caught up, she told me she was 14 weeks pregnant. Now I could not be happier for her, but it is still an impossibly painful situation. Just like I was 12 months ago, she's spent the last few weeks stressing about how and when she would tell me. She was going to wait until after Christmas, but when I invited her for dinner, she figured she would not be able to lie to me. She also had the cutest little bump that I would not have missed anyway.

She also proceeded to tell me one of the other girls in the office is pregnant and that my boss has started IVF. That makes five people pregnant in my office - with possibly another one on the way. This is not making my return to the workforce any more likely any time in the near future. No thanks, I'll stay here on my couch just a little while longer. I don't need to be smacked about by any more baby bumps than necessary at this point. Babies (bigger ones) I am finding ok. Pregnant women are hard work. As we all know, that's all I got with Hope. Not fucking enough.

My best friend is having her second baby at the same hospital I had Hope. I can only imagine just how heavily this has impacted her. I feel awful for taking away some of the joy from her pregnancy. It was not just me who lost my innocence when Hope died, it was every pregnant woman I know. And pushing 30, I obviously know a lot of them.

At her latest appointment, she commented - realising she was probably being over-cautious because of what happened to me and Hope - that her bub had been a bit quiet. She told the Obstetrician on duty about me, and she seemed to remember me. And so she bloody should. So, erring on the side of caution, they sent my friend off for an ultrasound to check fluid levels and an hour of fetal heart monitoring. Bub is fine and my friend could breathe a big sigh of relief. And so can I.

But I'm still sad. Sad that I had to learn these lessons for people. This is the same level of care Hope and I deserved. I may not have told the midwives when I was in labour that fateful weekend that I was "worried" as I wasn't overly sure I had anything to be worried about, but it had been going on for three days and my Hope's welfare had not been checked for more than 24 hours. With what I know now, this was simply too long to let me go. These so called experts would know how quickly things can change. That 24 hours is a LONG time when it comes to labour - early labour or otherwise. That contractions over a long course of time can wear a baby out. That it is always better to be safe than sorry.

Four months on, I have not yet reached any modicum of acceptance. I have made no peace with anything. I cannot move on and forgive. I am mad as hell. I want her back god damn it.

Hello again, angry stage. Clearly I'm not done with you just yet.

11 comments:

  1. 4 months is just a blink of an eye, Sally. I can't imagine how you would feel acceptance yet. And it sounds like there is so much that is unclear, unresolved - so how could you feel acceptance? I am so sorry... just so sorry. And sending you such big hugs from across the oceans. Love to you.

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  2. Sally I think about you all the time. I completely agree with you and I am so proud of you for hammering that hospital for action. You have every right to be angry and I'm not surprised you are more so now with it being Christmas. It will come in waves is my experience so far.

    Thinking of you.

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  3. So sorry, Sally. It's not right that our babies died the way they did and knowing that they will change procedures and others get better care as a result of our losses isn't much comfort - we're here with you. Lots of love to you.

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  4. Sally, I don't have the same clear mistake that doctors made to be able to point to, and yet I'm right there with you with the anger and the questions. Don't stop asking the questions! I think it was Monique who said this before but it feels like our firstborn is expendable, like they'll know better than to make the same mistakes with us the next time round. Its what makes me so sad about ttc right now, since as much as I do want another baby, what I want MOST is Ezra in my arms, not just in my heart.

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  5. Sally - this is the worst of the worst. You have something a lot of us don't - an EFFECTIVE replay that could have saved your baby's life.

    I can't even imagine how torturous that must be. I can imagine feeling uncontrollable rage toward those who said, "Just stay put. Don't come until you need to."

    I think of you all the time. I drink in Hope everyday. So beautiful.

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  6. There's nothing I can say that hasn't already been said.

    I'm just so very sorry and so very sad for you and for Hope

    Hugs
    xxx

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  7. There is nothing that can make this right, and I am so sorry. If it's worth anything at all, know that we all share in your anger and wish you peace and comfort. Warm hugs from New York.

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  8. sally,
    i woke up this morning thinking about the second letter i still need to write to my midwife, the first didn't quite get it all through to her. her first line response was 'your baby's death was the saddnest thing that ever happened in my 30 year practice'. thanks for nothing. she didn't get it. that she could have done things differently. you are right, everyone is scared of being liable. but they go on with their lives while we are in the pit of hell, even 4 months down the road. we have every right to be mad as hell and it still won't bring our beautiful babies back, it's just too cruel. and like you said the womb is supposed to be the most beautiful sacred place, not a place babies can die. i am so sorry we are in this hell together. i am here with you.

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  9. Sally,

    Of course you are angry and frustrated and pissed off and so you should be. Someone said once that you just need to feel how you feel and don't apologise for it or try and feel any different.

    It seems that in Australia each doctor in each hospital in each state have very different 'procedures' when it comes to labour and delivery - I don't understand why there are such differences... Its just crap.

    I am sad for you and your precious Hope.

    xxx

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  10. If you were here in the states I'd talk to you about calling a lawyer. There is another dead baby mom here who also had a midwife fail her, at the cost of her daughters life. In her situation, even the OB who ended up delivering her daughter, offered to help her sue the midwife for malpractice and maybe even some criminal things.
    You have a similar scenario. I don't know how things work where you are, but I would seek out an expert if they are available to you, because often times it is their voices that the medical community listensd to. Sadly, as you have learned, us dead baby mamas get ignored and shoved away by most.
    Don't give up that anger, you are so entitled to it. I hope it finds a place and can help you to find some answers.
    xxoo

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  11. You are entitled to be angry and stir the pot. Keep at them Sally. They failed you and Hope. And I ditto what kalakly said. It sounds like they are at fault, but they will never admit that to you. Speak to a lawyer about it.

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