Wednesday, January 21, 2009

I hate my life right now

Feeling really shitty today.

I think I am noticing a pattern and it is when I'm home alone. It also usually comes after another interaction with the hospital, and that came yesterday afternoon.

It has been agreed by all (Simon, Mum and hospital) I need to see a psychiatrist, but the HOSPITAL WONT SEE ME! The same hospital who sent a labouring overdue mother home to go and "relax" and while I was "relaxing" my fucking baby died. On their watches. Under their supposed care.

They said I would need to see my GP to get a referral to see another psych. Which means more out of pocket expenses for me. I'm just not going to do that. That hospital was responsible for my physical well being while pregnant/giving birth, now they are responsible for the shitty mess of a human being they have left behind. For my emotional and mental health. They did this to me. They should be trying to fix me. I'm reluctant to do this in the first place, so if I am going to follow through, I need it to be easy for me. Even though that hospital is where horror lived for me, I have been back there plenty of times now that I don't find it that hard. Strangely, I also feel quite attached to the place. It is the only place Hope knew. Well, I guess she knew the hospital next door (where Simon works), where she had her autopsy. And the back of the funeral car. And the funeral parlour which I had no idea where it was. I hated those five days before she was buried having NO IDEA where my child was. I remember always asking my mum "where is she?"

Things are bothering me today, and I think another reason is probably because we are edging closer to finding out our fate this month. So many women go on to have babies so quickly after a full term loss. I assumed that would be me - you know I'm young, healthy with no known fertility issues. And it was easy the first time, so I assumed it would be easy again. It has been five months now. I could have been a good couple of months pregnant by now. But I'm not, and I guess in a way that is a good thing. Need to let my body heal. Blah blah blah. But mentally, I don't know how much longer I can take this. I just can't explain exactly how much I need this. I have served my time. I need this.

I'm in limbo. Suspended. I can't take her cards down. Five months on. The dining table is still littered with hospital paperwork, grief books, her memory box, footprints, handprints and all the other little tiny reminders we have she actually existed. I'm clinging on to it all as I can't move forward yet. I need a new pregnancy to help me do that. It is her time now and it will continue to be her time until there is proof that there is another little one in there. Then I guess I have to learn how to split their time. Like any mother of two does I guess, but just different. Oh so different.

I know I'm a scatterbrain today but is really probably just good old fashioned PMT.

I am really hating all the ironies of what has transpired in my life in the past five months. I was so worried about one or both of my grandparents dying before Hope arrived. They are both frail and I really wanted them to meet her. I never thought my baby would die before both of them.

I also worried early on in the pregnancy as I worried about having to return to my place of work. I had a really rough time at work in 2008 and was counting down the seconds until I reached 36 weeks so I could get the hell outta there. I guess I thought once Thursday 17 July 2008 finally rolled around, my last day, I was 100 per cent in the clear. I really did think it would be my worst nightmare if my baby died and I had to go back to work as I never had much of an intention to return. I was going to do this SAHM thing PROPERLY! Simon and I would scrimp and save to make it work. Mum would probably go part time to look after the baby if I had to go back for one or two days a week or fortnight. We were really going to make such a good go of this. Then bang, it happens. She dies. My nightmare does come true. I am now living out that life I was so terrified of 12 months ago. Thankfully though for now, my income protection insurance payments are good enough that I don't have to go back. But I guess I can't hide from the fact that someday, I will have to return to the paid workforce.

I have always hated computer games. But now (after another stupid credit card splurge) we have a Wii and today I have been playing the stupid thing at home alone. I have so much spare time, it is ridiculous. So I'm sitting at home playing a stupid computer game. So much spare time when I am supposed to have no spare time. So much time to do things for me when me was supposed to be coming second now. Time to cook nice meals, time to piss about on the computer all day. Time to sit outside for half an hour and stare at my tomato plants and do nothing. Time to think about exercising but never actually getting around to doing it (does the Wii count?) Just too much damn time.

I still can't stop thinking about my good friend's sister in law who was due the same day as me after a really complicated pregnancy who went on to have a healthy baby girl the same day I was sent home from hospital. That friend has invited me over to her place tomorrow, but there is no way I can go. I might have held newborns, played with two year olds, fed a one year old his dinner and generally been around a lot of babies since I lost Hope, but I don't even want to see a picture of this one. And it is her house, I can't ask her to take her pictures down. I know there will be pictures. I just can't do it. She understands and I told her my reasons. But these are really good friends. I have known her and her husband for years. I went right through school with her husband, he's one of my closest friends. In a few months, he'll be 30. There is no way I can go to that party, or any other party they ever have. I can never see his sister and that baby girl. Ever.

And while I'm on 30ths, Simon turns 30 on Saturday. We are having a few people here. Only the handful of friends we've seen since we lost Hope. And I feel bad, as most of them are my friends. It is his birthday and I can't even let him invite a few people here as I'm still too broken to see people.

People keep telling us it will be fun and they are looking forward to it. We're not! Simon should be waking up to a cuddle from a chubby five month old for his birthday! It is another big day to get through without her. Another day where we will try to distract ourselves by having family and friends here to fill in the silent holes in our lonely little house.

Seriously, I have no idea what this post is about. I don't know what my point was or where this was going. I've had it open all day and I can't settle on a rational thought pattern. I don't even know where this blog is going anymore as most of the time, I just ramble on and on about the same stuff. Over and over again. I can't believe anyone even reads here anymore. It is so sad and depressing.

Either way, I might have to take a break for a little while. I just don't know if I can share more disappointment this month but if there is a glimmer of hope in the way of a positive result, I'm not sure I will be ready to share that either. I feel I have really backed myself in to a corner here.

I'll come back when I feel strong enough to share whatever the outcome is. I just don't know when that will be.

Oh please don't be PMT. Please.

23 comments:

  1. Wishes for you this month Sally.

    I have nothing to offer except to say that I understand the work thing all too well.

    Take your time with everything.

    And that I'm thinking good thoughts for you.

    Love and hugs.

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  2. I'm still reading your blog, Sally. I still care and I don't think you're repeating yourself in a way that's not okay.

    Some fucktard has decided that they don't want to deal with you anymore so they are trying to get you to go elsewhere. Maybe they smell a lawsuit...Who knows. I'm not surprised this has upset you.

    Anyway I wanted you to know that I'm still here. I still care. I still understand. I am still grieving too. There is nothing wrong with you, and nothing wrong with expressing your pain.

    Thinking of you,

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  3. Sending you hugs and love Sally. I hate my life right now too.

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  4. Sally,

    I am bothered by how you have been treated and am angered that the system does not support families who have suffered the loss of their child, as you and Simon have. It is an injustice that you suffer the worst kind of pain and loss, innocently, whilst there are mechanisms in place to support those who inflict harm to themselves and others because of their own careless disregard for the frailty of life - and these people, the ones that the system is designed to help, incredulously, are the ones that can take sole responsibility for their situations because of choices they have made. What about people like you? Yes, they should be trying to fix you and working damn hard at it. It is complete B.S. that they pass the buck.

    Selfishly, for me, your writing always makes so much sense, in that you articulate so beautifully and clearly how life really is for us - the mothers without our children. For me, your writing is comforting, even in its sadness.

    Sending you positive thoughts and hugs and a hope that your wish comes true.

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  5. Sally,

    You can tell me to piss off if you want to, and I will do so, but I do want to add one more thought about this.

    The hospital is 100% in the wrong in refusing to provide care for you. Where I live, if this is your local hospital, they would have to provide that care, like it or not. And I agree that they should be doing everything in their power to make your life easier, not harder. So I'm with everyone- they suck.

    That having been said, I would also really urge you to not let their horrible callousness get in the way of your getting care that could really make a difference. Nothing will make things right or fair or the way they should be- but sometimes therapy and medication can help in some ways- with sleep, with clarity, with finding a way to take steps forward in the day to day.

    I'm biased, as a psychologist myself. But as a babylost mama I can tell you that I spent well over a month of daily phone calls and outright begging banging on doors until I found someone who was willing to see me at a cost I could afford. I spent weeks raging at how unfair and twisted it was that nobody would help me when I was in so much pain and had spent so much of my life helping other people. But my husband forced me to keep calling until I found someone. And it has been a lifeline. Therapy has not taken away any of the sadness, but it has given me hope, a safe place when the world seems so dangerous, and someone besides Alan who can say to me, "I am here. I will walk with you. I won't go away until this gets better- and I know that it will." Therapy gives me concrete help, a place to fall apart, and ideas about how I can begin to put things back together.

    So if you think there's any chance that this could help, please don't let the fact that the hospital is screwing you stand in the way of your own self care. That way, they still suck and you still get hurt.

    OK. I will piss off now, sending you love and hugs all the while. And do take a break if you need to, but I will still be checking on you and holding you in my heart.

    -Danielle

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  6. I went to a counselor instead of a psychiatrist. Don't know if you have licensed counselors in AU or not. Covered by insurance with a co-pay - talk therapy and mental exercises.

    and yes, the Wii counts :)

    And yes, this all sucks. And you are not all over the place - EVERYthing is on your mind. Type it out.

    Don't push your body on the pregnancy. maybe it is still rebuilding. I wanted to wait a year, just to heal and so I wasn't pregnant when the one year came around. I don't think it is all bad. I feel much stronger, emotionally too, than I did at 5 months, 6 months, even 10 months. Focus on healing instead of getting pregnant. Then maybe it will happen.

    And, are you charting? "Taking Charge of your Fertility" or www.fertilityfriend.com

    Please take a walk today (tomorrow - i think you are ahead of me) for me - since it is warm there! It is 20 F here and walking is little fun :(

    hang in there and take care of yourself.

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  7. I agree it is ridiculous for you to have to fight for the care you need. It does sound like they are trying to just make you go away. Fight for yourself, for your health, for your well being, you deserve it and they owe it to you, it is their duty to you, to care for you.
    I know it is hard but try not to put so much pressure on yourself to get pregnant. You have been through so much and your body needs to heal so that it can provide a safe home to a new baby. It will happen, it will.
    And remember, no matter what, you are not alone, we are all here with you, always.
    xxoo

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  8. Sally - FIGHT for your right to care. You know what you need, or at least what you need right now - and no amount of political bull$hit should keep that from you.

    Re- your blog. This is exactly the place to dump all your emotions, over and over and over - if you want. If you choose to hold some for a while, that is fine too.

    I'll be here whenever you are. Always reading and always supporting.

    much love
    cara

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  9. I'm so sorry the hospital is being idiotic about your care.

    And you can be all over the place in a blog entry if you like. Grief is horribly repetetive, so if you do repeat yourself, that's just one way of being authentic.

    I still have all Teddy's cards and things out, too - can't yet put them away even after five months, still need to put my hands on them now and then, still cry when I read through them.

    Thinking of you and wishing for you.

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  10. I'm so sorry you're getting the run around from the hospital. They like to 'act' so accomodating, don't they? If you want to have some fun while trying to conceive, you should venture over to mothering.com - there is a loss board there and it's full of really amazing, positive beautiful momma's! Lots of folks trying for their 'rainbow' babies and it's great to be there with other folks in our position. Someone else asked if you're charting.. I highly recommend that too.. I used temp tracking and mucus with all of my pregnancies, and it works really well! PLUS makes you feel very productive! :) I hope things turn around soon.. Hope wants her momma to be happy again.. I just know it! :) Take care of YOU!

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  11. dani, if you read this, i would love to get in touch with you but i don't have an email address. drop me a line. you always leave the nicest comments and i feel bad i can't return the favour.
    sally

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  12. Sally,

    My email address is dani819 at yahoo dot com. Email any time- I would always love to hear from you.

    -Danielle

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  13. Sally, you've packed an awful lot in this post. You have a lot going on, and I agree with whomever above that suggested trying to find a proper grief counselor to unpack some of these issues with. Beginning with the hospital. In fact, you might even call their social services department and ask if they can recommend someone to you.

    I just found out that my bellwether (baby down the street born right after Maddy) is moving. I think both mothers are relieved.

    The waiting must seem insufferable, and I'm sorry. It really seems to compound the grief and everything else you have going on right now. Keep writing if you can. Thinking of you.

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  14. Sally,

    I can't say anything that hasn't already been said.

    I just wanted you to know that I am here, and I am reading. If you need to say the same things a million times over, please do. This is your place. Your place to say whatever you need, whenever you need. Don't ever feel like you need to hold back.

    Just a minute a time sometimes, Sally. <3

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  15. Hi Sally,

    I don't really know what to say that doesn't simply offer advice (e.g., I don't know if you've looked into support groups in your area. I need to do that myself). But, I wanted to let you know you are not alone.

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  16. Hi Sally,

    I started reading your blog the week after I lost my son, Aidan, @ 38 weeks. I want you to know that reading your blog is helping me on my "new" journey.

    I am so sorry that you are having such a hard time getting the hospital to assist you with finding a psychologist. I am a licensed counselor myself and have a wonderful relationship with my therapist. She can not "fix" it but she can listen to me VENT, and CRY and has been there to support me. 2008 was a terrible year. I lost my father, unexpectantly as a result of a massive heart attack- I was 6 weeks pregnant with Aidan and never had the chance to tell my Dad about his 1st grandchild he was expecting. My heart was crushed BUT having Aidan helped me so much through the grieving process. Then BAM!! the worst thing that could've happened to me- happened. I lost my 1st child. My precious baby boy.

    Please keep blogging. You are helping many souls around the world. More than you can imagine.

    Sending you peace and healing!

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  17. Hope , I have been reading your blog for a while now. You and all other angel mums are so close to my heart :) You and your angel are giving me wings to reach out to as many grieving families as I can. My services are being recognised and supported by RCH, RWH and Werribee Mercy. Thank you for sharing your pain, thank you for your honesty,thank you for teaching me how to validate the mothers loss of the precious baby. I send you my love and hugs - Dana
    This is a poem I have posted on my blog today :
    A visitor from heaven
    If only for a while
    A gift of love to be returned
    We think of you and smile
    A visitor from heaven
    Accompanied by grace
    Reminding of a better love
    And of a better place
    With aching hearts and empty arms
    We send you with a name
    It hurts so much to let you go
    But we're so glad you came
    We're so glad you came
    A visitor from heaven
    If only for a day
    We thank Him for the time
    He gaveAnd now it's time to say
    We trust you to the Fathers love
    And to His tender care
    Held in the everlasting arms
    And we're so glad you're there
    We're so glad you're there
    With breaking hearts and open hands
    We send you with a name
    It hurts so much to let you go
    But we're so glad you came
    We're so glad you came

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  18. I am more than happy to read your crazy rambles. You sound lovely and normal to me. I know you want this new pregnancy so much and I KNOW it will happen for you. Please try and be kind to yourself. 5 months is not long at all and its so so so raw still. I think for me I got worse after about 2-3 months in...and then after about another 3-4 yuck months I sort of improved again. It really is up and down. God I wish I could fix for you, for me, for everyone. SIGH...

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  19. I am so sorry you are feeling so terribly down, **HUG** I wish I could give you a hug in real life. I am thinking of you today, **BIG HUG**

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  20. Always here, Sally, always. Have you looked into Compassionate Friends? I found this online... is it near you? http://www.compassionatefriendsvictoria.org.au/contact.htm

    Love, Gal

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  21. Thinking of you today Sally ... I wish that things would start to go right for you. It is so hard to have so little, and yet have people make it difficult even when you manage to ask for help.

    We will be here whether you are writing or not, but know that it is always a safe place for whatever you need.

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  22. oh sally-
    i will always be here for you. i am right there with you, emotions and all. i have yet to find myself a therapist but i know i need one. make sure you do it, from what everyone else has said, it ends up being a really important piece in the healing process.
    i just took a yoga workshop and the teacher kept telling us to let it go, all the stuff that was keeping us stuck, and i keep thinking "no, i don't want to let it go, i want to feel it" and i felt it and cried and came home and bawled.
    anyway, keep writing or stop, whatever you feel is helping you. i stopped reading blogs for a week, not sure if it helped or made this week tougher, but i kinda just needed to step away.
    please keep emailing me and venting, we need each other right now. i feel EXACTLY like you. i know what you are going through. i am here to listen and support you.
    xo
    Lani

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  23. Tonite i felt so depressed, and when i typed in "I hate my life" it brought me to your blog.I felt depressed because "I dont have that special someone to share romantic evenings with",the muffler on my car is bad, and i have my sciatica back again.After reading your blog, i feel more than a little guilty.Your spirit and strength is amazing,and your ordeal brought me to tears.May i suggest not ever going back to that hospital, as they are not good enough to even know you,and you may be causing yourself more emotional pain.I thank God i have my family,and i wanted to say God bless you.Your beautiful baby was lucky to have a mother like you, even if so briefly.Her name was perfect,and your story brought hope to me.May God bless you.

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